Malia Moore

Our first interview was with Itzi. She had come to see me last year when I was in the hospital recuperating from being so ill.  Itzi came with her mom and dad to check out Delicias and to see where I work out daily. She worked out with Sofia and me on Saturday. Itzi is very nice, she seemed a little nervous to be holding me though and of course the first time she picked me up I cried. She  was trying hard to please me. Itzi and her parents came over for dinner that night and the following morning we went back out to the platform to work out with Itzi again. I still sense that she is nervous working with me but then who would not be I can be hard to handle sometimes! We had a nice time with Itzi and her parents and after we worked out on  Sunday they left at noon to head back to San Jose.

This past Tuesday Olga came from San Jose to interview. Olga came by herself, she said she is used to traveling alone so that is a good thing!  She arrived at noon and watched how I have lunch. At 4pm we went out to the platform and worked out. Sofia showed her the exercises she does to me on a daily basis and then Olga had to reinterpret them. She did a good job and had much confidence when holding and working with me. I have to have someone that is not going to be afraid of me as I am always trying to take charge of the situation!!! It is important for me that whoever is taking Sofia’s place is comfortable with working with me. I am not that easy to manipulate around! Olga stayed the night and the following morning we went back out to my platform. Today I am very sleepy and not really wanting to do much of anything. Sofia, Olga and my mom keep trying to wake me up. Finally I opened my eyes and we were able to get a good hour in of working out. Olga left on the 3pm bus back to San Jose. Now we have to make a decision. In the end it is really up to me as if I am not happy with my therapist nobody is happy!

Malia

November 28th

Thanksgiving is a nice holiday as it reminds everyone what to be thankful for. I am so thankful for my parents, my family and all my friends. I am thankful for my followers on this blog and hopefully every once in a while I can inspire or encourage another parent who is raising a kid like me. I am thankful for the strangers who do not even know me yet support me and our cause. I am thankful for God and all that He has blessed my family with. Today we are headed over to our friends Stephanie, Jim and Naia’s house for a fish extravaganza. Grilled mahi mahi and tuna! Mom did make a pumpkin pie to keep with tradition! We always have fun with them and I am looking forward to seeing them today. They are always so sweet to me.

I think I had mentioned before that I am trying out a new diet. At first I was taking in lots of good fat and protein… Now Shelbe my new nutritionist, has changed it to a high carb diet. Right now I get goat’s milk in the morning as well as  a homemade cereal made with barley. Mom grinds up the barley in her coffee grinder then makes the cereal. It works pretty good. Barley is very coarse so it has to be blended very well in order to pass through my tube. This morning I was asleep while mom was giving me my cereal thru my tube. Sometimes if the food is not blended up very finely it will get stuck in my tube and then we have to take it off and clean it in order for it to pass food again. Mom felt like the barley was stuck so gave it an extra little push to try and move it through. The next thing you know, the syringe slipped and mom shot cereal all over my face! I was sleeping so soundly that I did not even wake up! Can you believe that? Mom got a wash cloth and cleaned my face up and I still never woke up! Some days I can wake up to the slightest little sound but not today! I continued sleeping and mom went and made more cereal! What a morning but hey it’s Thanksgiving so I am grateful I was able to sleep through that!!!

Malia 🙂