Archive for June, 2011

Seizures go away!

Wednesday, June 29th, 2011

Unfortunately the seizure monster has crept back into my life. For a long time, except when I was sick at the hospital he has stayed away. The seizure has changed from when I had infantile spasms. They seem to be more intense and for longer periods of time. I have had one every other day now for the past two weeks. It really scares my mom and dad. There is not much that anyone can do for me and it is hard on my parents to have to watch me go thru this. My mom and dad clap their hands and call my name real loud to try and get me to snap out of it. It has worked on a few occasions. I just really go off into another world. It is like my brain freezes. I am sure hoping they go away.

On a brighter note, Sofia has not noticed any major set backs due to these seizures in my workouts. Matter of fact Sofia and my mom were brushing my teeth this week and I did not want my teeth brushed anymore so I put both my hands on Sofia’s arm to make her stop! In my own way I told her enough with my eyes and action! That may seem like such a little thing to you but it was a huge thing to my mom and Sofia! They were so happy that I did that!!! I am thinking what are these two jumping around about! I don’t want my teeth brushed!! They do this to me everyday!!! I dont like having my hair brushed either but my mom turns on the blow dryer and I really like the noise so I let them get away with doing all the different types of brushing to me!

Sure hope I can get these seizures under control!

Love Malia


Back to the real world!

Tuesday, June 21st, 2011

We made it back home on Sunday afternoon. I am back to my workouts two times a day and considering the much needed break and relaxation I am working hard again! Not much going on this week! My dogs were happy to see us! What a wonderful vacation! Thanks to George and Grace for flying here to be with me on my birthday! I am already looking forward to next year!


Birthday Activities!

Tuesday, June 21st, 2011

June 17th 2011

Well my dad’s birthday and my birthday (we are two days apart) were a huge success!  I am now 3 years old! Successful in that we were able to relax at the beach! Joe Callahan, a dear friend of my mom’s, gave me the best birthday gift ever! A beach house in Tambor for four days! Thanks Joe!

So much excitement! George and Gracie arrived on a Saturday and on June 15th my dad’s birthday, we took off to Tambor to relax and have some fun. Sofia came along with us for the birthday fun as well! We had a beautiful home 3 minutes from the beach and best of all a big pool right outside of our bedroom! I loved being able to swim all the time and the water was so nice and warm I could swim in the mornings as well! The weather was great and it was awesome to hang out with George and Grace. Gracie was very sweet to me and enjoyed reading me books and I loved having her read to me!

On my birthday, after breakfast, we went to the beach for a two hour stroll! It was so nice strolling down the beach and on our way home we raced with my dad, mom and Grace! I loved having them run with me down the beach. We forged a small river as well and there were beautiful Macaws flying everywhere! It was such a beautiful morning to be on the beach!

When we got back home we went for a dip in the pool, I had lunch and my normal nap! My mom, dad, and George were getting my birthday cake ready. This year my  mom did a star for me! Mom and dad say I am their shining star! Awwwww..

We did not have a big party this year just a few friends from Tambor and we cooked some hot dogs on the grill. Late that afternoon, mom and I went swimming again. I love being in the water it is such a great feeling to me! I was pooped after my big day and thank goodness we cut the cake early.

Saturday was a day of relaxation and more swimming. It was a great vacation! I could have stayed another four days!

Love to all and thanks for all my birthday wishes!

Malia xoxo

Tuesday, June 21st, 2011

Swimming with my glasses!

Dad and me!

Tuesday, June 21st, 2011

Tuesday, June 21st, 2011

Christine, Aurora, mom and me!

Tuesday, June 21st, 2011

I like balloons!

My star!

Tuesday, June 21st, 2011


Tuesday, June 21st, 2011

Birthday frosting!

Tuesday, June 21st, 2011

Mom makes great buttercream frosting!