Archive for May, 2014

mis amigas!

Saturday, May 31st, 2014

My friends Shadi and Gemma came to visit me today. We went for a swim together in my pool! We had much fun hanging out in the pool together and I was showing off how I can now hold on to the side of pool! After swimming we did arts and crafts together! Tiani, Shadi’s mom and dad were so sweet and cooked us dinner in our house. Tiani is a most fabulous cook! Mom and dad were happy! After we had dinner the girls finished before me and started watching a movie. After my supper I joined them in the rocking chair. We hung out together the three of us watching The Last Unicorn and I had so much fun with them. They are really sweet to me and I like hanging out with them!
Love Malia

May………

Saturday, May 31st, 2014

I am not sure where this month has gone. Time is flying by! I am going to be six soon! It has been a good month. I continue to stay healthy and I also continue to have seizures but they are not so debilating as they were before. My new medicine has helped to control them and they are not as intense. My therapies have been going great. My parents and Maria Jose are very proud of me. I have begun to put more weight in my arms and legs. I hear everything and watch everyone. Although I may not speak verbally I speak with my eyes and actions. My parents and MJ are helping me to communicate with a switch button. They ask me questions and I can hit the button to say YES, or we actually have it saying SI!! :) You know I understand both spanish and english! Pretty good huh, for an almost 6 year old! :)

Exciting news in May was that I lost my first tooth! Last Sunday mom was giving me breakfast when she noticed that my bottom tooth was no longer there! Mom and dad went searching in the bed for it, but it was not there. I swallowed it! I am a big girl growing up. :) I think mom was in a shock for a few days that I actually lost my tooth! Maria Jose could not believe it either! It has been a good month! I am a lucky girl.
Love Malia

having fun!

Friday, May 30th, 2014

buddies!

Friday, May 30th, 2014

Malia and Gabrielle

Thursday, May 29th, 2014

May 1st, 2014
Today I was able to spend some quality time with my new friend Gabrielle. My physical therapist before Maria Jose was Irene. She and I spent 9 months together and during those months Gabrielle was growing inside the tummy of Irene. I knew for certain we would for sure be friends one day! Over a year has passed since I have been able to see Gabrielle again. I met him once briefly when he was only a few months old. We came into San Jose for a few doctor’s appointments for me and had the wonderful opportunity to stay at Irene’s house. We were used to staying there as when Irene worked for us, it was the year I was always sick and at the hospital or staying in San Jose.

We had such a great time during our stay! We went for a stroll together, punched bubbles, and played with some of Gabo’s toys! It is funny because Gabo (Gabrielle’s nickname) has blonde her like me but both his parents have dark black hair! Irene says that since I was always on her tummy I had to have transferred my blonde locks to Gabo! :) We really enjoyed our time together! Gabo was very sweet to me!One day at lunch my mom held Gabo in her arms and I was a tiny bit jealous! I let everyone know at the table as I whipped my head around to give mom the stink eye about holding another boy in her arms! I thought hey wait a minute those arms are for only me!
Gabo and Irene are coming to my birthday party! I cant wait to see them again. Thanks for the hospitality Irene!
Love Malia