Archive for July, 2015

tick tock

Tuesday, July 21st, 2015

Tick tock goes the seizure clock you will never learn how to leave me alone. You come when I sleep and when I awake at times you never leave me alone. You hang over our family like a dark grey cloud. Why wont you leave me alone? I just want to sleep and open my eyes and give my parents the smile they know… Tick tock seizure clock please please leave me alone. Not a day goes by that you arent by my side always haunting, waiting, to make your move. You dont scare me seizure man, you make me only stronger each time you strike. You lift me higher and brighter I am an angel you see and I am stonger than you, smarter than you and will continue to always fight you…. You wont bring me down….I will conquer you….

fly high with the angels Juan

Monday, July 20th, 2015

June 28th 2015
I lost a dear friend. My friend Juan had been good friends with my parents for many years. Juan was a very special person. He was always so kind to me. He talked to me and he kissed and rubbed on my feet whenever he came to visit us! His daughter Hope and I are friends. She must miss her dad so much as well as his other children and all the rest of us down here! I know you are soaring in heaven now and playing guitar beautifully with the angels. You will be greatly missed.
Love always,
Malia

My special jewelry

Monday, July 20th, 2015

It was quite the honor to wear my nice jewelry to Irene’s wedding. It has much meaning to me. My bracelet was given to me by Kathy who now is considered Aunt Kathy! It was the first time we met at my benefit two years ago that she brought me this beautiful bracelet. Then when she came down for my birthday party she brought me something even more special. A tiny wooden box held a petite amethyst and diamond ring that was once Lindsay’s. Kathy had the ring espeically made for Lindsay when she was a little girl and now she was giving it to me to wear. I absolutely love it! It was a perfect time to wear Lindsay’s ring to Irene’s wedding. I wear it with honor and pride. I look up to Lindsay she was my hero and still is! No other has fought Lissencephaly for so long like Lindsay did. Thanks Aunty Kathy for giving me her ring. It is so very special.
Love Malia

Pretty pretty

Monday, July 20th, 2015

Wedding time!

Monday, July 20th, 2015

BODA!!

Birthday!

Wednesday, July 1st, 2015

Birthday Girl!

Wednesday, July 1st, 2015