Archive for December, 2014


Sunday, December 14th, 2014

December 3rd 2014
Today Maria Jose and I celebrated two years of being together. Maria has been with me through thick and thin. Thankfully in these last two years I have not really been sick! Only three times to the hospital in two years is pretty good! It takes strength, tenacity, patience, and tons of love to be my therapist. Maria has all these qualities and more. She is originally from Cartago. Cartago is a city 25km east of San Jose and it is 1435 meters above sea level. It is quite a different climate than here. In Cartago people wear sweaters!!! Maria takes the bus to get out here, it is a long journey and takes about 6 hours after taking the ferry, taxi’s and bus. We live in the jungle where there are definitely more critters around than in the city, and Maria is used to living in the city where there are malls, movies, shopping and more. She has adapted very well and even though she prefers the cold she has become used to the hot of Delicas and she definitely likes the beach! :)

Maria Jose is more than just my physical therapist. She is my best friend. She not only pushes me to be the best I can possibly be she loves me dearly. She bathes me, does my hair in a million different ways, she feeds me my lunch, we read books together, make cards together, walk together, and sometimes take naps together. Even though I do not communicate verbally I do communicate with my eyes, with the sounds I make when happy, sad, or mad! We know each other very well. I am grateful to have her in my life I am doing better than ever physically and you should see my thighs right now!! They are muscular and strong. I have been doing more and more different exercises lifting from my trunk to a sitting position. I know that maybe just maybe someday I might sit on my own. One thing we have is faith in each other. She believes in me and I believe in her.

Maria Jose has a silly side too, she likes to push the back of my chair really fast and stand on the back of it as we sail through the living room. She likes to push me down in my stroller on all the bumpy parts of the road while I kick my feet and legs and laugh. One thing for sure even though I am special I am involved and try to do all the things that other kids do too! I never get left out, Maria and my parents make sure of that. I hope you know how much I love you Maria. Thanks for being so kind to me, for being my friend. I look forward to this year together.

A quote for Maria Jose,
“A best friend is someone who won’t judge you, who loves you for you, and most of all makes you feel like you are worth something!”

Love Malia xoxoxo

Happy Thanksgiving

Tuesday, December 9th, 2014

November 27th, 2014
So many things I am thankful for today. I am thankful for my health and for my family and friends who love me so much. I am thankful for all the love my parents shower on me and all things I am so fortunate to have. I am very thankful for Maria Jose who is my best friend and my phsyical therapist. She and I have an incredible bond and we are the very close to each other. Even though I dont speak with my lips I can speak with my eyes.

November has been a pretty good month. I have had a few nights where I could not sleep but over all I am sleeping better. My seizures have come back to bother me. Thankfully I am not having as many seizures as before but I am definitley having them on a daily basis. Since the antibioitcs I took when I had the that terrible UTI infection I began having the seizures again. It was a main side effect of the antibiotic… Is such a bummer as we had three good months without any seizures. We are striving to get back there and to get rid of those seizures over all. It is a hefty goal but one we will take on with full force. :)

My Great Uncle Carl came to visit for a week with his good friends Marci and Steve.. They were so sweet to me. We had much fun hanging out with them and visiting them at Kalapiti’s. It was a great time.

Today we are having our friends over to celebrate with Thanksgiving with us. I am looking forward to seeing everyone especially Naia she is a buddy of mine! I hope all of you had a great day today and that this holiday season is a blessed one.
Love Malia