Malia Moore

Such a good time had by all during the holidays! Was so awesome to have both sets of grandmas here and Paw Paw Brown too! We had much fun together and made cookies, mom and dad read me the night before Christmas as they always do..It was really nice being together! On Christmas day we had friends over for Christmas dinner and dad smoked a turkey all day long which was delicious.. I did not have the best Christmas morning as I woke up with a bad seizure that wiped me completely out.. I did however rejunevate by the night time and we opened a few of my gifts as there were plenty of them under the tree for me! I kept opening up gifts daily with mom and dad… So blessed to spend another Christmas and even more so with more family. Love Malia!

December 4 2017

We are headed to San Jose today! We are excited as my Grandma Marg is coming to spend Christmas with us! We are so happy to have her here during Christmas!!

We have decided to start a new tradition! Last year when we donated the couch and chairs to the ICU department of The Children’s Hospital in San Jose, it was at the same time of their annual Christmas tree lighting. I had such a nice time at the tree lighting as was treated like VIP so we decided we would come to San Jose each year to see the lighting of the Christmas Tree. It is a huge tree a big Cypress that proudly stand at the front entrance of the hospital. They have many activities going on! There was music, dancing, a parade, and of course Mr & Mrs Claus! I loved every second of it especially when Santa came up to me and leaned down to talk to me! He was so sweet. I love Santa.

After the lighting we headed to one of the oldest theaters in town, the Melico Salazar Theater in downtown San Jose. My parents had bought box seats for us to go and see the Nutcracker!!! Talk about a busy day! Roxanna came with us as well! It was great having grandma be a part of all this!! Once we arrived to the theater and got settled in our seats I decided to take a quick cat nap! Mom kept tapping my shoulder trying to keep me awake but geez, it had already been a long day and it was nice and cozy inside the theater! I only napped for thirty minutes and when I awoke the ballet dancers were jumping and twirling across the stage! The lights, design, and costumes were amazing. I no longer wanted to sit in my chair but to sit on my mom’s lap! So for the rest of the play mom held me on her legs and I watched until the end of the Nutcracker!! Everyone was very nice to me and made special care that I had plenty of room to pass by! The producer of the play came up to me at the end and thanked me for coming. It was a very special night, and something we will definitely do again.. It was fun dressing up and going out on the town.

To me, the experience of going to the ballet, participating in the tree lighting, and picking up my grandma there could not be a better gift. The spirit of Christmas is not the gifts you receive but the love you give, the sharing with family and friends and the art of giving. Merry Christmas to all.
Love Malia,

November came and went so fast that I can’t believe we are already into the second day of December! I have been busy getting to know Roxy and adjusting to the new changes. Roxy and I are getting along great. She is very attentive to my needs and is such a big help. She is very sweet to me too which is always nice!

My seizures have been okay, not great but not as bad as before. Some fun things I did in November was to go to the beach with mom and dad and hang out with dear friends of ours. About a week ago I somehow caught a cold not sure how that happened as I had not been out of the house much at all except for strolls on the property and some beach time! I had a high fever for a couple of days but thankfully it went away! I have had to be on oxygen and getting lots of respiratory therapy and nebulization treatments but I am doing much better and coughing a lot. Very very grateful that we did not have to go to San Jose and that I did not have to take an antibiotic!

I am getting excited as both my grandmas are coming to see me, and my paw paw brown too…..We will all be having Christmas together this year which is the first time in a very long time! We didnt do a big Thanksgiving this year just had a few friends over… So grateful for so many things. Most especially my health and a decrease in seizure. I am also grateful for all those who love me so…..
Love Malia