Archive for September, 2009

My Benefit Photos are now online

Monday, September 7th, 2009

See the Austin Benefit Photo Slideshow :


Benefit in Austin /22

Friday, September 4th, 2009
Navy Pier Chicago IL

Navy Pier Chicago IL


Friday, September 4th, 2009

August 14th 2009

We are off to Chicago. I am a little nervous about this trip as I am meeting with one of the top specialist in Lissencephaly. He is going to read my MRI to my mom and dad. We made it into Chicago with no problems. We had a wonderful driver pick us up at the airport as my mom and dad were not to keen on driving in Chicago! We stayed downtown and arrived on Thursday afternoon. We decided to head out to Navy Pier and go for a stroll along the water. It was a beautiful day. My mom put me in my carrier but I soon fell fast asleep. All this travelling really wears me out. It was nice though to feel the sun on my face and wind in my hair.

The following day we went see the doctor. Our appt was at noon. I could tell my mom and dad were anxious as no one likes to go to the doctor.   The doctor was very smart and had lots of experience, however he was no Patch Adams. We met with him and he said that my brain is almost completely smooth. I have the beginings of convultions at the front of my brain. I think that is a good thing! I could have none! So basically on a scale to 1 to 4 the doc gave me a 2 with 1 being the worst.My mom and dad say that being right in the middle is not so bad! We can only go up from here!  We have to work on fattening me up! I work out so darn much and have been adjusting to the Texas heat what did they think I was going to gain a ton??? So mom is back in the kitchen putting every fattening thing she can into my mouth! Overall our trip went well. We have more knowledge and my parents say knowledge is power! Back to Austin tomorrow! Only 6 days left until my party!

Uncle Andy and Me

Friday, September 4th, 2009

Uncle Andy is not so bad at giving me the bottle!


My first vacation!

Wednesday, September 2nd, 2009

August 8,2009

This is the begining of my vacation. How exciting. I will be travelling  from Costa Rica to Austin Texas, Chicago, Austin, Vancouver, Victoria BC, Kitimat BC, Vancouver, back to Austin and then home to Costa Rica! This will all unfold in a six week time period!

We woke up and caught our 7:00 am flight to Austin! The start of our trip was looking good as we were bumped up to first class! My mom and dad were happy about that and me too as I had more room to spread out on my mom’s lap! The food is not so bad either! We went to see my Uncle Andy out at his cool house in the hill country. He has been so sweet to me and made this awesome web site for me. Austin Texas sure is hot! It was over a 100 degrees everyday I was there! Ouch! Inside all the buildings it was like a freezer! It took me a while to get used to the change! I love being in Texas though great mexican food! I love my refried beans and cheese!

We went out to my grandma’s house in Lockhart and I was able to see all my Aunt’s, Uncles, Cousins, and friends. Everybody wanted to hold me and run their hands through my hair! I was sure tired the next day as everybody passed me around like a hot tamale!

We will be leaving soon for Chicago. More stories to come.