Archive for June, 2019

VNS has arrived to CR!

Sunday, June 30th, 2019

Two days after my birthday my mom got the great news that the VNS had cleared customs and arrived to Costa Rica. We are so excited. It has taken so very long to get it here with all the approvals, paperwork, and bureaucracy! Hoping to get the VNS surgery soon. It’s just an ongoing battle with the seizures each day. It gives me alot of hope to think that maybe just maybe this device is going to change my life.

Will keep you all posted as soon as I have a date. Hopefully it is soon!
Love Malia

Mi Cumpleanos!

Sunday, June 30th, 2019

My dad and I had a great birthday bash together this year! I turned 11 years old on June 17th! We had such a great time and our theme this year was Pirates and mermaids! Almost everyone this year dressed up! I overall had a pretty good day.. A few seizures got in the way right before the big treasure hunt, but I managed to shake it off and particpate. The hunt took alot of preparation and planning. Roxy and my dad worked very hard on it. There were maps to be made, empty glass bottles to be filled with hints, and of curse the hiding of the treasure. Genesis Ella and Gabriella were on my team. We had alot of ground to cover to find the treasure.. During the hunt one of the hints were to find two presents and give to me. My team was showing me the map and hints and then off we would go to find another one. We finally made our way back to the house and Genesis found the hidden treasure by the pool! :) Inside were lots of gems, golden chocolate candies, mermaid key rings and tatoos! Roxy had made every single gift bag with cutout glittery sea shells that she drew and cut up! She is so talented! I love my Roxy. After the hunt we had to bust open the pinata, dad helped me swing the bat and I did good job hitting it! Ella had the final hit and broke the pinata open and out fell all the candy onto the ground.

Our dear friends Andy, Krystal, and Diego came to celebrate and helped all weekend with the preparations. They were such troopers my mom was doing a good job of bossing everyone around! Ha ha! Hoping this year is going to be one of my best years ever as I know as soon as I get the VNS surgery I am going to get better control of my seizures.

Love Malia xoxo

New girl

Sunday, June 30th, 2019

We picked Roxy’s replacement. She started June 10th, Roxy would be training her all week and then Sunday was my big birthday party! For the most she did pretty good with me. She had no real experience in physcial therapy but my parents and I decided that if she was willing and had the desire to learn she would grow and gain her experience with me.

The following week when she was on her own was when things did not really go so well. She did not seem to obtain information from her week of training with Roxy. She did not talk to me the way the other girls did. I did not feel very comfortable with her. In short, she lasted three days. We are very grateful and blessed that we realized sooner than later that she and I were not a good fit. She left back for San Jose on Thursday. Mom had called Roxy earlier in the week and asked her to please come back and she said YES. It’s so good to have Miss Roxy back! She and I are a great team together. In my 11 years this is the first time a new girl has not made the cut. Roxy is so kind and sweet and is willing to stay on with us until the end of year and we are all very happy about that!
Love Malia

Roxy

Saturday, June 1st, 2019

A few months back Roxy let us know that she was ready to move on and find a nursing job at a hospital. Roxy and I have built a great friendship over the last year and 8 months. She is so sweet to me and I know she loves me very much. We have lots of fun together and we have become quite the artistic team. There always comes a time for everyone to move forward in their lives and we understood that Roxy needed to begin her nursing career.

For the last two months mom has been doing interviews with different women to see who will be my new friend. We had hired one girl on the spot. She did a great job with working out with me. My parents decided that we needed to go back to working with a physical therapist. I need to be pushed and continue to try out new exercises. Cynthia was supposed to start on May 6th. It would give her three weeks to get everything in order and quit her current job. It was two weeks later when we received a call that she would not be able to accept the position. Her dad had become ill and she needed to take care of him and give him physical therapy. It was a bit of a shock. My parents were relieved that at least she did not take the position then have to leave here without us having a replacement girl. Sometimes things happen for a reason so we took that as a sign and back to interviewing more girls.

My mom had made the job description very detail oriented listing all the duties that come with the job.. We didn’t get as many applicants as before but we did have the opportunity to interview 4 more girls. Mom would first read their resumes then she would send to Maria Jose for a quick look over. The next step would be a video call and if that went well they would come out to Delicias and spend the day with me seeing what my daily routine entails. They would have to work out with me on the floor. Maria Jose was also speaking with them after mom’s first phone interview so that they could compare notes about each girl. We have two girls coming out in the next few weeks. We shall see who gets chosen to hang out with me!

I want to say to Roxy, thank you for loving me the way you do and for taking such good care of me. I know we will be friends forever and I wish you all the luck and the very best in your new endeavors.
Love Malia