Since Thanksgiving things have been going well. I have had a few road bumps along the way but we are moving through them. On the 27th of November I had a seizure. It was the first time I had experienced a seizure in over a year. I have been very blessed not to have had them since September. One day Daniella and my mom were working with me at the platform, we were working on my neck control. I do this one exercise where the ball is between my legs and I put my hands on the ball and lift my head up. I am really good at this exercise. Next thing you know my head came crashing down and hit the ball. My mom thought it was wierd that I did not have the control like I normally do. We did the exercise again and my head banged the ball one more time. My mom knew then that something was not right and laid me down on the table. The next thing you know my legs were flinching every ten seconds and this lasted about 5 minutes. The seizure made me very lethargic.
Seizures normally come on when I am waking up from a nap. I had another one the following day after my nap that lasted a bit longer. My mom called my neurologist and we have increased my seizure medication. I have not had to increase my dosage since I was six months old. It makes sense to have to increase it as I am a little chunky monkey now. I had a few more seizures over the next few days but the increase in medication has helped control them. I am hoping they go away again for good. The type of seizure I have is called West Syndrome. It is the only seizure that actually causes devlopmental regression! It is really important we get my seizures under control beacuse all my hard work and effort over the last two years are in jeopardy if I begin to consistently have these seizures! So all my friends out there say a prayer for me that the seizures go away!
Love Malia
You can bet I am praying those darn old seizures stay away. You have worked too hard to get where you are.
Are you getting ready for Santa?
I am always thinking of you. Lots of love.
Grandma Marg
Malia, we are so proud of how wonderfully you are doing…we can’t wait to see you and your parents….we will miss having Christmas with you all but will be there soon and bringing cousin Casey with us. We know that our Lord is looking after you and will keep you growing and developing better and better each day. We are always praying for this and know that He hears us as we pray. We love you and will see you soon…hugs to you and your folks and the puppies too. Granny and Papaw Brown
PS…Malia tell your Mom she does an awesome of keeping us all informed and your Blog totally rocks!!! love you Granny
Happy New Year Malia to you and your great Mom and Dad. I hope that Santa was as good to you as I think he was! I also love your Palma Xmas tree. Thank you so much for allowing us to keep up to your busy life with your own blog. Rupert & I so enjoyed your visit and thanks for bringing Mom and Dad, we enjoyed them alot also. Keep your stick on the “ice” angel. xxoo