October 28th
Today during lunch I all of a sudden just stopped breathing and turned blue within seconds. My mom yelled at me and I caught my breath and started to breath again. At first mom did not think too much of it as I have done this once or twice before. The next day I did it three more times and still keeping turning blue. I continued to hold my breath for three days and am making my parents very nervous. I only hold my breath for 5 or 7 seconds but my face and lips go blue. My parents think it is a new type of seizure. They call them absent seizures. Mom asked on our support group other moms for advice and they seem to agree it is a new type of seizure. Thank goodness on Halloween we are heading into San Jose for a routine checkup with my doctor and obviously a visit to my Neurologist Dr. Luna. Sure hope this goes away soon.
Love malia
My heart goes out to you Miss Malia as well as your parents. Seizures are a scary thing and I hope they figure out a way to get them under control. You are an amazingly strong little girl and an inspiration to many. My daughter, Lola also has a type of lissencephaly. You two also share the same pediatrician, Dra. Castro and the same neurologist, Dr. Luna. While we are leaving Costa Rica, we will continue to watch your progress.
Much love,
Meredith & Lola
http://www.sayholalola.com