October 16th, 2012
The last two days spent at my Gammy and Pa Pa Shroyer’s were not the greatest. My reflux is overwhelming right now. What normally takes me 1.5 hours to have my meals are now taking me 4 hours. My parents have had to slow my food down tremendously in order to try and avoid my refluxing. We have increased my reflux meds and I am now taking them three times a day instead of once a day. I felt pretty good the day of the birthday party but after that it was back to aspirating and nebulizing me sometimes up to four hours in a day we had to do respiratory treatments. My grandparents were a big help, my grandpa made a fabulous meal everynight and my grandma helped out with my parents as she used to be a registered nurse and was there to give an extra hand if needed. Thankfully my parents are able to manage me on their own as any other parent would probably have been running to ER. There were some nights that I was very close to going there myself!
One night my parents noticed that I had smelly urine and green gunk on my diaper. Not a good combination. My mom called Dra. Castro, and she said it was better to take the round of antibiotics she sent us to Texas with to keep me from getting worse. There was no doubt in my parent’s mind that I was having another urinary tract infection. The only catch with this round of antibiotics is that they are intramuscular injections. Irene is not showing up until Friday so we are solo on this one! Thankfully Gammy knows how to give IM shots and she showed my mom how to do it. My parents videotaped her and then the following day my Aunt Kelley (who is also a RN) gave me the next shot and we videotaped that as well… The last injection of the antibiotic was left up to my mom. After videotaping and watching two times she felt pretty confident to give me my shot.
On Wednesday we headed towards Austin to my other set of grandparents house. On our way out of town we swung by and saw my great grandmother Izola in Shiner. It was wonderful to see her again..The next two days at Granny and Paw Paw’s house I behaved. I did not have to be aspirated nor nebulized and it seemed like things were looking up for me and my big day.
My Auntie Debbie came over to see my mom and my dad had left to see Uncle Andy in Austin. They always get together and hang out at least one day when we come to town. Debbie was great and an awesome assistant to my mom as the following morning it was time for my shot and my mom did a great job administering it to me. I did not cry one time and Auntie Debbie helped out as well holding me still so that I would not move when my mom was giving me the shot. Now it is time to take an oral antibiotic for seven days since we have finished my round of Rocephin.
Love Malia