The Lissencephaly convention is happening this year. Remember when we had tickets and were planning to come home for my benefit and the convention? Three years later, the Liss Foundation decided to move forward and host the event at the same venue as before….. my favorite place Morgan’ s Wonderland. My parents are thinking of hosting another benefit for me when we go. At the moment I am not vaccinated. My parents thought it might be best to vaccinate me a few months before the trip instead of now as I hardly ever leave the house and the vaccine does not seem to last for more than 6months. It has been a hard decision for my parents to vaccinate me. Not because they are against the vaccine everyone at our home is vaccinated, more so they are concerned for me and my fight against seizures. Any little thing can trigger them. Obviously if I am going to Texas, I will need to be vaccinated so we will probably just wait and do it sometime in May .
My mom had to have surgery recently. It was a laparoscopic surgery on her abdomen. She was not allowed to lift me for one month! We still had some good cuddle times together but I know she was missing picking me up! Today she is on a plane to Texas to go see my grandpa, uncles, and cousins. Grandpa Shroyer and Gammy have not been able to travel to Costa Rica so mom felt it important to go and see them, also it is a surprise. My grandpa and uncles over the course of many years have always had a annual sausage making at my grandpas. This is going to be the last year. Since my mom has never been she decided to go and surprise grandpa. She is only gone a week but I know everyone will be happy to see her. I will miss her very much but dad y Cinthya will be taking good care of me while she is gone.