Every year a fabulous group of people get together to support me and help me raise awareness of Lissencephaly. None of us can believe that 7 years has gone by! The wonderful people of Opal’s Divine’s Michael and Susan Parker let us get together at their place to celebrate and raise money.
This year two new Lissecephaly Mom’s came Andrea Steppl and Joey Payton. Andrea has a son named Jack, my mom and Andrea have been talking for years now over messages on Facebook! Joey, lost her daughter Stella to Lissecnephaly this year. We still have her picture on our fridge. She was very pretty and sweet. She is flying high with the other Liss Angels now.
We had a great time at the benefit and we managed to raise $27,000. We will be donating $5000 to research of Lissencephaly… All my cousins came to my party! Everyone loves getting their faces painted. Just want to say thanks to so many of you who helped with the benefit and the wonderful silent auction items that were donated. I am so blessed to be loved by so many.
Until next year.
Love Malia