Today our appointment is back in downtown San Jose at the hospital I was at yesterday. Our appointment is at 6pm to see the nephrologist. She was running late and we did not get in to see her until almost 7pm. Mom had already started my supper outside in the waiting room. She was nice. I think she was a little overwhelmed with all my information and the fact that mom told her she was our last hope that we had had every exam possible to discover why I was having all these infections and we just keep coming up empty handed.
She was a good listener, she examined me and in the end she told us that there were many factors to why I keep getting these urinary tract infections. I have problems with constipation, I am always in a diaper and it is very easy for poop to get inside my urethra. So with that being said, she told my mom to put me on two prophylactics and to give me vitamin D, lots of citrus juices, and hopefully I will just stop getting these infections.
We also encountered on this trip that my sodium levels were low. This is called Hypnotremia. It can be very dangerous if not corrected right away. I have been sleeping lots much more than normal, one day I slept until 1pm. It turns out that my sodium levels were way down and sleeping too much is a symptom of sodium being low. The doctor suggested that I have some tests run to check and see if the reason my sodium levels are low is because salt is lacking in my diet. Our plan is to head home tomorrow but now we have to make a quick run into CIMA and have blood drawn so the doc can analyze my sodium situation.
Wednesday morning we got up and got everything packed up and headed to CIMA. When you have to catch a ferry you want to make sure you give yourself plenty of time! We got to the hospital by 10:45 and our goal was to leave by noon. We are shooting for the 2pm ferry! By the way did I tell you Uncle George and Gracie are coming in this Friday and that it is my dad’s and mine birthday this weekend!!! We managed to not have to say in San Jose too long and we actually are going to be able to enjoy our birthday weekend!!!!!
Love Malia