February 5th 2011
Late that afternoon, I began to have a fever. I also began to have seizures again. My fever kept going up. Dra. Castro was worried and took another blood count on me and it turns out my white blood cell count is very high. Having a high blood cell count and fever means infection not good. Dra. Castro was very worried that I had picked up another bacteria from the Children’s hosptial. Oh no, tell me this is not happening again. We took a swab from my nose and throat as well. I have come so far to be sick again! Dra.Castro immediately decided that I needed to have another catether put into my leg so that she could start me on another round of antibiotics. There really was no time to be spared. She called another doctor to do the surgery on me. Since I have had catethers in both my legs my veins have become hard and are becoming used up. They are worried they are going to have a hard time finding a vein that will last so that they can administer another round of drugs in me.
My parents and grandma are just sick about this and me too. I was doing so good! At 6pm I was rolled down to the operating room. My parents are so worried about me having to be sedated. I do not do well with sedation. It always creates a ton of secretions in me and I have a hard time managing my own let alone a drug that creates more of them. My parents are petrified that I will have to be intubated again. A hour a later I came out of surgery. They were able to find a vein in my leg. I did well during surgery.
When the drugs began to wear off something different began to happen to me. I was highly irritated. My mom tried to brush my hair out of my face and I tried to bite her. I was making all kinds of wierd growling sounds. My parents had never heard me do this before and I did not understand why I was feeling like this. I wanted to growl and bite everyone that tried to touch me. Well wouldn’t you be angry if you had to go thru what I just went through? Ugh…. I am so tired of all this. Immeditately we started the drip of antibiotics again. I still have fever. I do not feel very well at all.
That night when we got to the room I sounded terrible. I had so many secretions. Rebecca my respiratory therapist came to the room to aspirate me. She took out alot of gunk from my lungs and throat. My mom picked me up and was cuddling me when I started all over again to fill up with secretions. We had to call Rebecca again. In the end she had to aspirate me six times until she got everything out of me. It was not a pretty sight. I was sitting on my mom’s lap while she was aspirating me. I hate to be aspirated. It is the most horrible feeling in the world, but then I would rather be aspirated then to have another tube stuck in my throat. I managed okay, and finally at 2am was able to go to sleep and get some rest. I am exhausted.
Malia