November 28, 2009<\/p>\n
At 4am the alarm went off. My mom and dad were already awake. Neither one of them could sleep so good that night but I was sleeping peacefully as finally the NG tube was out from my nose. Off we went to CIMA me still in my pyjamas. We arrived at 5am and were admitted to the hospital. We all went into the surgery room as I was getting prepped for my surgery. The anesthesiologist showed up and wanted to talk to my parents about what she had planned on giving me. After that, my mom put me in my surgery gown and the other doctors showed up as well. There was a team of four doctors and two nurses that would be helping with my g tube placement. My pediatrician Dr. Castro took me in her arms and said goodbye to my parents. My mom and dad were nervous to say the least but felt confident in the team that was looking after me.<\/p>\n
About\u00a045 minutes later, Dr. Navarro the pediatric surgeon\u00a0came in to\u00a0tell my parents that the surgery had been a success. He also said you know your daughter she woke up \u00a0kicking and wanting her mom and dad.\u00a0The doctors had decided I would stay in ICU over night. Everything had been going great until I was adminsitered\u00a0Valporic Acid intravenously. You see\u00a0my g tube site could not be used\u00a0for\u00a024 hours and\u00a0my parents were worried about\u00a0me not getting my\u00a0anti seizure drugs. We had been told\u00a0by the neurologist that a different form of\u00a0Valporic Acid\u00a0was available via IV. Unfortunately\u00a0my little body did not like it and I\u00a0had\u00a0side effects from the drug. I was very agitated and irritable. I was thrashing around my arms and head and\u00a0it did not matter the amount of sedatives they were giving me as I would not calm down.\u00a0<\/p>\n
My parents\u00a0were extremely worried and so was the pediatrician.\u00a0She gave me a drug called Fentanyl that hopefully would calm me down so that I could relax and get some sleep.\u00a0My mom was holding me when she gave me the drug. All of a sudden my O2 level\u00a0dropped from 97 to 55 in a matter of seconds. I started gasping for air. I could not breathe. My\u00a0mom picked me up and put me in the crib\u00a0and the doctor then took over. It was nuts.\u00a0Before\u00a0this there were probably 10 people working in ICU\u00a0but at this time\u00a0there was only one nurse around and he\u00a0just did not seem to be moving fast enough. My mom was barking orders at him and telling him to\u00a0get some more help. My doctor was trying to resuscitate me\u00a0and was yelling for the antidote of the drug she had just given me. It was very scary. The next thing I am hearing CODE BLUE IN ICU!!!! My mom was a wreck, my dad never left my\u00a0side. My mom was running around trying to find help and to her it seemed like an eternity for anyone to show\u00a0up with the antidote.\u00a0Now all of a sudden there were 10 people in the room and everyone was\u00a0helping to save me.\u00a0Whew, I started to breathe again.\u00a0\u00a0<\/p>\n
I was only to be in ICU for one night. I had to stay for three. After the Valproic incident and the drug finally left my system I started to feel better. They started to wean me off the other drugs that were in me and I had a problem with that. I was agitated and irritable again. I cried alot that day. As a matter of fact I cried from 5pm till 4:30 am… They tried everything from Morphine, to Dormicum to finally Hydro Clorate and that finally did the trick and I fell asleep at last. My parents were exhausted to say the least and me too.<\/p>\n
The next day I was much better. Our goal was to get me out of ICU and up into a room. We finally made it upstairs and out of ICU. I was off of oxygen and the pulse monitor. I slept two nights upstairs and did very well. The nurses showed my parents how to clean my g tube site and how to feed me. They got the hang of it real quick. We finally left the hospital on December 3rd. We stayed at our same hotel and mom and I were flying out on Friday for home!!!! Dad took the ferry again and my mom and I arrived home by noon on Friday! I was so glad to be home and to tell you the truth I am doing so much better.<\/p>\n
Thanks to all the doctors and nurses who looked out for me and from all the support from my family and friends. Love Malia<\/p>\n","protected":false},"excerpt":{"rendered":"
November 28, 2009 At 4am the alarm went off. My mom and dad were already awake. Neither one of them could sleep so good that night but I was sleeping peacefully as finally the NG tube was out from my nose. Off we went to CIMA me still in my pyjamas. We arrived at 5am […]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-303","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=\/wp\/v2\/posts\/303","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=303"}],"version-history":[{"count":5,"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=\/wp\/v2\/posts\/303\/revisions"}],"predecessor-version":[{"id":308,"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=\/wp\/v2\/posts\/303\/revisions\/308"}],"wp:attachment":[{"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=303"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=303"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blog.maliamoore.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=303"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}