Malia Moore

Today I went swimming with Nancy Higgs! She invented Waterway Babies! She is a very nice lady! Me and my mom and dad went to the YMCA to meet with Nancy and we got to swim together! I still have this cough so we did not get to swim for too long together but the time we did was alot of fun! Thanks for coming to meet me Nancy and for coming up with my neck float ! Swimming is my favorite thing to do! Nancy is coming to my party tomorrow too! Tomorrow is the big day! 

Love Malia 🙂

Today at my PT workout, Carole decided I needed to take steps! You all know that I have been practicing standing for awhile with the help of shin guards and ace bandages! Anyway, Carole put me in a diving suit (kinda) it is made out of Lycra and it helps provide feedback to my brain through deep pressure and tactile stimulation. It is called a SPIO suit. Carole also put me in a headmaster collar. The collar wraps around my neck and helps me keep it stable while Carole and my dad were helping me walk! I really liked taking some steps! It was fun and I did not cry at all! Wow what a difference the world is from up here! My mom and dad bought everything we needed so we can practice walking at home! Thanks Carole for having so much confidence in me and getting me up on my feet!

Love Malia

Well it has been almost 10 days since I got this cold! We are headed into Austin today, I had to miss therapy last week, but am giving it a try today with Carole. I am feeling better and coughing less. My dad is now back and it is great to have him here. He helps my mom alot. I have a 10 am appt with Carole.  We have a house rented for my big weekend. We are meeting Andy, Suzanne, Greg, and Curtis for lunch at Evangeline’s after my workout! I am looking forward to seeing everyone!
Malia 🙂

The night after I spent all day at the doctor’s offices I began to cough alot. By the next morning I had a fever. My mom is now worried! I just dont feel so hot! There is absolutely no humidity in Texas right now as a matter of fact my curls have gone! We had to buy a humidifier for my room as it was so dry and it really helps with my lungs. There is also alot of ragweed and pollen in the air so we are not sure if this is a cold or allergy but either way I dont feel so good! My mom called Dr. Reardon and he did not like the fact that I had fever and that I had refluxed so much the day before! He suggested to my mother to go and get  a xray to rule out pnuemonia. My goodness I do not want that ever again. We went to take an xray at a clinic in town. It turns out I have no fluid in my lungs so that was great news!

The doc thinks I should just tough it out and not take antibiotics so that is what I am doing! I am ready to go home and get into bed. My mom is having to cut my food back and not feed me so fast as my little lungs are having a hard time keeping up with everything. Mom is giving me a steam bath two times a day and beating on my chest to help loosen up everything. Thankfully, I am able to cough. Last year I could not cough and that made it very hard for me to get better! This year I am stronger and I hope I get rid of this soon as I have a party to attend!

After my EEG, I had another appt! I was still not feeling so good and was continuing to reflux. We made it to the Dr’s office at almost 4 pm. I could not stop refluxing and my mom was starting to get worried. It really is painful when this happens! Dr. Onan, was kind enough to squeeze me in her very busy schedule and my mom really wanted her to check out my eyes, so I toughed it out and let them dilate my eyes. We had to wait a bit for my eyes to dilate and meanwhile I am still refluxing. My mom called my GI in Costa Rica, and  he too was in agreement that the EEG could have triggered this reflux problem! I just hope it passes soon.

After Dr. Onan examined my eyes, she informed my mom that I am far sighted in both eyes and I have a stigmatism. She suggested that I get glasses. She said since we cant really tell exactly what I see that the eyeglasses might be able to help my brain see things more clearly. She also told us that if I accept the glasses than that means they are helping! If I dont like them and won’t where them the Doc said well we would just be out a pair of glasses! It cant hurt to try them out it would be wonderful for me if I can see things more clearly. My friend Karen is bringing them to me on Monday. I will let you know how I like them! Right now I just want to get home and get some rest we have been in Dr’s offices since 11am this morning and it is now 5pm! Ready for some relaxation!

Hello!

So far I have had a really great week! I have done very well with my PT! On October 7th I have my first EEG after a year and I as well am seeing a Pediatric Opthamalogist. My grandma came with my mom and I as my dad is still in Canada visiting his family. At noon, the technician attatched a ton of electrodes to my head. I am in a room staring at the ceiling and my mom is holding my hand. The EEG will take 30 minutes. Dr. Reardon wants to see my brain activity. After the EEG, he will study it and then see me and mom.

After the EEG, I really did not feel so good and started to reflux something terrible. I hardly ever reflux and I could not stop myself from doing it. I must have had 5 episodes before we got out the door. My mom did not feed me any lunch as she was worried about me refluxing. We had an appt to see the neurologist at 1pm. Every time I reflux it makes me cry.

We went to Dr. Reardon, and I fell asleep on the table waiting for him to come in the room. I finally am getting some rest from the reflux. The doctor was not sure why I was doing this, but it all started immediately after the EEG so my mom thinks it has something to do with that! Our appt did not last too long. I was sleeping and we did not want to wake me up so Dr. Reardon did not get to see me show off, maybe next year.