Malia Moore

September 13th,

After staying 5 days at George and Grace’s house we headed to Austin. We had a most wonderful time with George and Grace! It is so hot in Texas right now that we mostly stayed inside but we did manage to go shopping and out to eat a few times and that was alot of fun. The roads here are so smooth I don”t get bumped around so much!

We met with Aunt Teresa in Austin. She is so sweet to us! Every year for my benefit she offers us her car and she has a super nice car  that is big enough to carry all my stuff!! We stayed the night with her at a hotel. My dad fed me that night and mom and Auntie T went out to eat Mexican food. It was a long day for me being in the car so me and dad just hung out at the hotel. I have a hard time adjusting to new places and did not sleep so well that night.

The following morning we got ready and said our goodbyes to Auntie T and me and mom headed out to my granny’s house. My dad stayed behind with our dear friend Uncle Andy and he went out to Leander to see his place and spend some quality time with him. Me and mom went out to Lockhart. It is so dry here and everything is so brown. It is sad they have not had any rain in so long and that there are so many fires!  That evening we hung out with my Uncle Jesse and Aunt Debbie and my cousin Casey. We had a really nice time with them. The following day  my dad came back and we had a wonderful time hanging out with my uncles and grandparents.

On Saturday, we loaded up again and went to see my other set of grandparents Gammy and Pa Pa Shroyer! We are excited to see the new bunk house they built for their guests. We arrived in the afternoon and got settled in the bunk house. We loved it! It is the perfect place for us. It is quiet and I slept the best there! We all slept in that next morning. We had such a great time with  them. They are wonderful hosts and cooked up a storm. We had so many different things to eat. My parents were in heaven! We mainly just hung out and visited but on Monday we went down to the pier and went fishing. That was alot of fun, I even got a sun tan.

On Tuesday, we headed to Buda and Dripping Springs. We are going to stay two days at Debbie’s house a dear friend of ours. We dropped off our things at Debbie’s and then headed to Drippin to visit my Great Aunt Sylva and Uncle Carl. I also got to hang out with my cousins Lily Jane, Ella, Tressa and Carly. It was so nice to see everyone it had been a long time. We later went out to dinner to Uncle Carl’s new restaurant. From what my parents said the food was delicious. We had a great time there and hung out for a while before heading back to Debbie’s house. We got home after 9pm and I was wiped out and went straight to bed. The following day we hung out and Micah came over that night for dinner. Dad gave me lunch and Debbie and mom went out to eat Mexican food. I think mom is trying to get her fix in before we have to leave!

On Thursday we were headed for Austin as Aunt Holly Uncle Mark and Ella were flying in for the benefit. I was suppose to have therapy that morning with Carol but she called and cancelled and said that a virus was passing through their office and she did not feel comfortable having me in therapy. I really wanted to see Carol as we see her every year and show her strong I have become! Oh well better safe than sorry hopefully we will see each other next year. Me, mom and dad went to have lunch at Evangeline Cafe and hung out with our buddies Curtis and Grego! It was great to see them. Grego will be headlining for my benefit! He is an awesome guitar player and singer! We checked into the rental house that afternoon. It was a nice place big enough for the gang that was going to be there over the weekend. Holly, Mark and Ella arrived safely and we went out later that evening for dinner together.  We had a really nice time and it is so great to finally be able to hang out with my friend Ella. She is two months younger than me and we are pretty cute together.

Friday is the annual Happy Hour at Freddies where my mom and dad meet up with all their friends and celebrate the beginning of my festivities! My granny always babysits me so that my parents can go out and have some fun with their friends! They usually get home at a decent hour and I like hanging out with my granny so it works out great! Our friends Shari, Matt, Karen, George and Grace are arriving tonight! I am looking forward to seeing everyone and for my big day tomorrow!

Love Malia

September 8th 2011

We left for the airport at  6:3o am.  I started my breakfast at 4am so that mom and dad would not have to worry with feeding me at the airport and only have to give me my medications at 8am. Our flight left at 9:30am. The first person we encounter at the airport is a man who is checking our passports and luggage and he was terribly sick. He kept sneezing and blowing his nose! My parents would not let me come near him and asked if we could go to someone else! I have a surgical mask on right now as mom and dad are being extra careful with me. Once we have gone through security we find out that we have to board a bus and then climb a flight of stairs to get to the airplane. Kinda crazy in this day and age! We have sooooooo much stuff. My poor dad is loaded down like a Sherpa but we manage and get on the plane and I did awesome during the flight. Mom was worried about my oxygen levels on take off and landing and I had no problems whatsoever and stayed awake during the entire flight. It was not bad at all! We had a great flight and arrived Dallas on time.

My Uncle George was not able to pick us up at the airport and as a big surprise he sent us a limousine! How fancy is that??? It was very  nice and the ride into Dallas was a breeze! We picked up Gracie from school and she was so happy to see us! Aunt Janet came over and hung out with us until Uncle George came home from work. I was so happy to see Scout their puppy dog as well!

I did not go to bed that night until 2am. I knew I was in a different place and was missing my bed. By day three of our stay with George I was finally back to sleeping on my early schedule!

We have had a great day in traveling, and we are looking forward to the rest of our trip and seeing everyone!

Love Malia

I started off my week pretty good. I usually am not the most active on Mondays but Sofia keeps me motivated and makes me work through my sleepiness! I did well all week during work out except on Thursday I had a small seizure. I was not feeling a 100 percent and then this huge thunder storm/mini hurricane blew through Delicias! The winds were so high my mom thought the roof of our nursery would blow off! Sofia had given me respiratory therapy and my O2 was not the greatest so they put me on oxygen for the night! The next morning I was not feeling so well and so my parents decided it was better safe than sorry and we decided to go into San Jose one week early before my big flight to Texas.

Sofia’s boyfriend had come in on Thursday to spend the weekend with her but since my dad had alot of work to do  my mom asked Sofia to come in with us the following day. At noon Sofia, Johnny, me and mom loaded up and headed into San Jose! Due to all the rain there was a huge landslide on the main highway into San Jose and we had to wait on the road for over an hour before we were able to move again.

We arrived to CIMA at 6pm. The first thing we did was take my  blood, then catheterize me to test for a urinary tract infection, and then off for an xray of my lungs. My blood test came back fine and my lungs were looking pretty good now all we had to do was wait three days to see if I had any  bacteria growing in my urine. We left the hospital at 8:30 pm and got to the hotel around 9.  I was exhausted but did not sleep very well. I never do well in a  different bed!

Sofia and Johnny left back to their home on Saturday and mom and me hung out for the weekend. On Sunday morning I had a pretty big seizure one that lasted over ten minutes so my mom had to administer Valium to me rectally in order to get my seizure to stop. My seizure began early that morning around   7am and mom was very nervous having to give me valium. She immediately hooked me up on the spare oxygen tank we have and then called Linda, our good friend and PT of mine since I was one month old. She came over to be with mom and me and I was managing well with my O2 stats. I slept for a little while and Linda kept asking my mom if she was sure she had given me Valium as after I woke up Linda worked out with me on the hotel bed while my mom took a shower. The rest of the day went fine and I had no more seizures.

On Monday mom was calling the lab to find out about my urine culture and the news was that everything was clear. My mom called my neuro and explained that I was fine and there was no infection brewing in me so he decided that we just wait until I come home and monitor my seizures before changing my seizure medications.

My dad came in on Tuesday, and we were so happy to see him. Sofia continued to come everyday to help my mom and work out with me. We are leaving for Texas early Thursday morning.  I am looking forward to seeing all my family and friends and we are all hoping that my seizures stay at bay while we are travelling.

Love Malia

I had a good week of working out with Sofia. I did not start the week of with  a ton of desire to work out but by the end of the week I was doing very well and Sofia was very pleased with my progress. Mondays for me are like everyone else, who wants to go to work on Monday?? Sarah came to visit me again this Monday and she wrote me the nicest comment here in my blog. I really like her coming by and visiting me!

I had a great weekend with my parents. Mom and dad went to Sarah’s parents house for dinner on Saturday and Sofia stayed and watched me! I am glad mom and dad were able to go out and have some fun, it has been almost a year  since they have gone anywhere without me. I enjoy Sofia’s company and was in bed early on Saturday. On Sunday we hung out in the hammocks and watched Rango. It has been quite stormy and windy here. We have one week here before we start heading North to Texas. I hear the heat is unbearable there! Sure do hope it cools down by the time we get there. I am looking forward to going home and visiting all my friends and family. I cant wait for my party! The Shriner Clowns are performing for me! Yeah! 🙂

Malia

We have been home for a week now since San Jose. It always takes me a while to get my groove back but I am doing good again. Sofia pushes me really hard and does not let me cry my way out of working out. She is a great therapist and friend. We have alot of fun together out at the platform. Many animals come to visit us. I especially like the squirrels, sometimes they throw things at us. I also have two new friends coming to see me. Sarah and Rachid.  They have come to see me workout three times and it has been great. They cheer me along and help Sofia by handing her things and putting up the toys when we are done. It really makes my day to see them out at the platform. They are very sweet to come and see me. They are 8 and 11 years old so I can imagine they might have better things to do than come watch me workout but they do and it is great!

We just bought our plane tickets for my party. I am looking forward to going home and seeing my friends and family. My parents are a little anxious about traveling with me but I now I am going to be just fine!

Love Malia