In this month, I have been battling my seizures frequently. Thankfully I went to San Jose last week and saw the only Doctor in San Jose that knows how to adjust my VNS. Remember the surgery I had to put the pacemaker in to help with my seizures? The doctor who previously had been seeing me retired. The only other doctor I had worked at San Juan de Dios the public hospital. Social medicine is a great thing if you are not in a hurry. My good friend and physical therapist decided that she was going to help me get into see this doctor!
Cinthya’s sister Vivianna, works at the children hospital and did us the big favor of taking over my appointment card for scheduling in person so we would not have to make a special trip into San Jose just for making the appointment. Vivianna is charismatic and she helped us to see the doctor by (squeezing us in) his next available appt was in February. So blessed that we could go see him and he adjusted my VNS a bit higher.
Our trip into San Jose was fast and furious as always, in and out of appointments and mom and dad shopping while Cinthya looks after me. One day while waiting on my mom me and dad and Cinthya went to the park across from the hotel and flew a kite! That was really nice to be outside in the city at a big park flying kites. Dad put the kite string in my hand to let me give a try at flying. My cheeks got a little rosy that day but it was worth it to be having some fun and out of the hotel room! 🙂
Naty and Leo her new beau came over to visit us and we ordered some take out Chinese. It was great to see Naty and I hope she comes to visit us soon. We came back home three days later, things are going pretty good. You would think with the increase of the VNS that I would be better with my seizures but it was the opposite. Once we got home I had to have injections four days in a row to get my seizures to stop. None of us know why… They were incredibly strong it has nothing to due with the VNS device, as remember I used to have 6 to 7 strong seizures a day before the device. Now I usually have one a day and sometimes can go a couple of days without having one but these last few days were brutal and incredibly strong mean seiuzres. Sometimes I do a great job of kicking them to the curb as Aunty Kathy says… but other days they are just to strong and mom and dad have to stop them with injections.
After the weekend passed I began to get my groove back and doing better both seizure and sleep wise. Cinthya is back as she took a few days off and we are back to our routine. Our trip to San Jose was successful we had not been there in six months which is a good thing!
Love Malia xoxo
