Malia Moore

Christmas has already come and gone.. Where did 2012 go?? Most of my 2012 was spent in the hospital and being sick with UTI’s but I am only looking forward now, there usually is never any need to look back at the past. I just know 2013 is going to be a banner year for me!!!

My month spent with Maria Jose has been great. I really like her. She fits in so well with our family. She is funny and nice and a great therapist. I have been so blessed by every therapist that has come into my life. For some reason though the marker is nine months! My dad says I chew them up and spit them out! Ha ! Well when you accept the job of the therapist you are not only a therapist but food giver, respiratory therapist, massage tummy therapist, baby sitter and well much more. I am who I am, and I come with alot of challenges and it takes a very strong person to accept the position of therapist as everyday is not going to be pura vida! Being with me will make you stronger, open your eyes to so many things and you will learn from me. I as well am a great teacher! Any person that works with me will leave very well prepared for their next endeavor! We sure hope Maria makes it pass the nine month mark!!! Be the first Maria Jose go for the year!!!!!!!!

Christams, was awesome. ON Christmas eve day mom and me were hanging out cooking together and dad was working. ON this day I muscled up all my might when my mom was talking on the phone and I began to make sounds to her. Sounds I had never made before! I was telling her,, helloooooooooooo mom off the phone and on to me! She hung up the phone as she heard me trying and trying. She turned around and looked at me and said Malia what are you trying to say to me??? What are you telling me? YOu know what I told her??? I said mom Merry Christmas, I love you ! She knew it!!! She was so happy she had tears running down her face, she knew I was speaking to her and it was the best gift she had ever received. I was pretty happy too with all the muster and might I put forth to make my own special words to her….. It made her day and made mine.

We had a great family Christams together. Wonderful friends, food and fun….. Now it is the end of the year and I am looking forward to the next one…
Happy New Year to everyone,
Mucho amor
Malia

Since being home from the hospital I have been doing really well. Irene is with us until the 1st of December and since we did not spend a ton of time together here at home I wanted to really impress her with how well I can work out when I am feeling good. My last three weeks working out with her flew by. I worked harder than ever and Irene was very impressed with me. I am going to miss her terribly. We have become such awesome friends and she is so kind to me. It has been wonderful getting to know her this year and her family. We all feel so blessed to have them in our lives. We know we will stay in touch with them and continue to be friends forever. So that is a good thing. I am looking forward to working out with Maria Jose, who will be arriving on the 2nd of December.

We had a great Thanksgiving and we have oh so many things to be thankful for… I could begin the list of thanking but then I might not ever stop as I have so many friends and family to thank and most importantly I have my health right now and I am ever so grateful for my health.. It has been so wonderful being home and enjoying where we live. We even managed to go to the beach on Sunday and listen to the sound of the waves…. Nothing quite like it.
Love Malia

November 5th 2012

It was great to be home but it was not for long. I began to slowly recuperate from having such terrible reflux while in Texas but one night my parents discovered that is could very possibly be that I could have a tear or as the doctors say a miscommunication from my rectum to my vagina. Once my parents spoke and explained what they had seen with their eyes she suggested that right away we go to CIMA and that I have a vaginoscopy. In order to do this exam I would need to be put under anesthesia. My parents never like to have to put me under but it was necessary and even though it was disturbing to think that this tear might be there it was somewhat of a relief to think we might have found the answer to my problems regarding urinary tract infections.

We left on a Sunday and we had scheduled Monday morning at 11am the exam which would take approximately one hour. It was quite different checking into CIMA this time as there was no rush we arrived late Sunday afternoon went up to the room and mom and dad read to me and played me music until I fell asleep.

The next morning Rebecca came in and gave me respiratory therapy before my surgery just to make sure all the phelgm was out of my lungs before going under. My parents were with up until the anesthesiologist gave me the drug to put me to sleep. I got the hiccups right away as if I had been drinking too much! My parents were strong and when they took me I was just beginning to fall asleep.

After an hour passed the doctor came to get my parents. Only one parent could be in recovery so mom went in to check on me and speak with the doctor. The doctor said everything went fine and that he could not find anything wrong with me. He said he tried and explored every avenue possible but that he found everything to be intact. My parents were somewhat relieved but also disappointed as we all thought this would be the answer to the infections. Instead the doctor said all was fine down there and that I would not need any further surgery. On one hand that was great news as the surgery for this tear is not a easy one. I came out from my drugged state a bit cranky and I was also very sore. I did not sleep that great that night as I was uncomfortable but mom got me a pain killer so that I could finally get some rest. Tuesday evening I was allowed to go home and we went and stayed the night with Krystal and on Wednesday we drove home.
Hopefully I will be able to stay home for a while.
Love Malia

October 29th 2012

We left El Bolero and headed home with all out luggage! We had a good trip to the ferry and was home by 4pm. I did really well on the way home and slept most of the way. It was so great to pull in our driveway. Our dogs Selva and Indio were ecstatic to see us! It was so great to see Luisa and Bismark. I missed everyone now I am ready to be home and relax for a little bit! That trip was a doozy!!

Love Malia

October 26th 2012

Thankfully we did not have to leave for home right after the benefit. I was able to recuperate three days at Uncle George’s house. There is no way I could have flown after our road trip to Dallas. I actually slept two days straight. I had so much I needed to catch up on sleepwise! I am having to eat very very slowly as to avoid having to much reflux and thankfully I have not had to be aspirated since the day we arrived to Dallas.

The day before our flight a cold front blew in and dropped the tempatures by 25 degrees! It was quite chilly the day we left. My parents had me bundled up like an eskimo! We had to hire our own private van to take us to the airport with all our luggage! I am going home now with my stroller and my wheelchair and a huge box that carries my the second base of my wheelchair! We are loaded down! Once arriving to the airport the flight was delayed by 45 minutes. I was doing okay until about an hour into the trip and when mom had to start feeding me. Mom put me on O2. I was doing okay though. When we landed the pilot stated that he had some news for us. He said we were not in San Jose but Liberia. Liberia is another small airport outside of San Jose. He said the weather was bad in San Jose and that we had landed here to wait it out and fill up with some gas. My parents were concerned because Diego our good friend and Guierllmo our mechanic who had our car had come to pick us up in two cars. We quickly called and at least Guierllmo was able to leave our car at the airport for us. Two hours later after sitting on the tarmac, me on my last battery of oxygen and a woman four rows behind us coughing up a lung the pilot finally came on to say we were leaving for San Jose. We landed at 11:30pm, four hours later than we were suppose to arrive. Arturo another friend and a taxi driver came to airport to help us with all our luggage and then we proceeded to go to Turrucares to where we were staying the night. It was 1am by the time I got my jammies on and into bed.

The following day I slept practically the entire day and my parents did not do much of anything either. We were all exhausted. On Sunday we went to CIMA and drew my blood and on Monday we headed to Delicias. What a long trip. I am so very happy to be going home. It was fun to see my family and friends in Texas but it was exhausting and this trip was the hardest one for me yet. Not sure what was making me so uncomfortable while in Texas, maybe I have allergies. All I know is that I am so so happy we are almost home.
Love Malia

October 21, 2012
The day after the benefit I did not have such a great day. The antibiotics I am on for this current UTI are messing with my stomach. I have cramps and gas in my tummy and am having problems going potty. I am also full of phelgm as I am having reflux so bad. At least I felt good for my party. I am not able to sleep either. It is going on three days that I have not had a proper sleep. My mom and dad did not get to bed with me until 5am Sunday morning as I was having to have respiratory therapy at 2:00 and 3:00 am. So Sunday was a tough day on everyone. Irene helped soothe me in the morning and mom and dad tried to catch a little shut eye. Basically Sunday was not the greatest day and we are headed to Dallas tomorrow.

On Monday we took off at noon to head to Dallas where we will be staying with Uncle George and Grace. Irene was giving me lunch in the back seat and immediately after I began to eat I began to reflux. They put me on O2 and by the time I arrived Dallas my heart rate was skyrocketing, I was breathing way too fast, and I was on 3 liters of oxygen. Mom and dad got all the equipment out and we started therapy. This went on for hours and this was the first time that my parents thought we would have to go to the emergency room. My phelgm came coming back over and over again. Finally it began to subside. At midnight Uncle George came upstairs and mom and dad both had the we are exhausted crazy look in their eyes and I was stll wide awake and fussing. Four days with no sleep would make anyone grumpy! Uncle G decided we needed a change of scenery and told my mom lets go for a stroll. So out the door we went at midnight strolling me around with my oxygen machine and not so great attitude. Scout (the dog) came along for moral support.

The stroll really did not put me to sleep but I did calm down. After we got back to the house they took me upstairs. Dad had fallen asleep on the couch. Uncle George patted me until I finally fell asleep holding his finger. I was so exhausted from crying and just not feeling well. Hopefully I can get some much needed rest.
Love Malia