Malia Moore

June 18th 2016
Today we had our dual birthday party! It is a wild west theme and everyone coming is dressing up cowboy or cowgirl style! Grandma and Mom have been very busy since coming back from the beach preparing for our big party! There is lots of planning and cooking to do! Naty my PT is in charge of the decorations and games for us kids! I have been doing pretty good… I still have issues with sleeping at night and morning seizures seem to always want to bother me when I wake up but other than those two things bugging me things are good. I am excited about my party today many of my friends came to wish me and dad happy birthday.

Naty turned the house into a saloon and we had hay bails outside and a giant boot for my piñata. There were horsehoes, and roping contests as well as water balloons! Of course my dear friends Sara and Rachid played their violin and chello for me and even received an encore! They played can can one more time and had everyone dancing! It was so much fun! 🙂 Thanks for all who came, and especially grandma. It meant the world to me to have you here. Until next year!
Love Malia

I am so excited to say that I had the best time with my grandma. It has been almost two years since she has been here to visit us. We were all very happy about her arrival. Grandma came in for my birthday and my Dad’s 50th birthday. You know me and my dad always celebrate a birthday together. We of course did much book reading together, singing, and planning for the big event! My mom had surprised my dad with a two day get away for all of us to go to the beach.

We had a really nice time. We went swimming in the pool, watched fire dancers and the sunset at the beach, went out to dinner with friends, and just relaxed in general. I was so relaxed that I fell asleep for the first time in months by myself without any kind of sedation. I was in bed by 9:30pm and slept all night for two nights!! This was amazing for me! My parents could not believe it. Typically I am up sometimes until 2 or 3 am and not happy! What was it that made me sleep so well? Was it the air conditioning? Was it the sound of the waves? Not sure….. but when we returned home I wasn’t ready to go to be that night. I stayed up until 2AM… Uubelievably at my dad’s birthday dinner we were out with friends and my parents were telling them how great I was sleeping in St. Teresa and could it possibly be from the AC? Well,, our friends Shelley and Marshall, said they had a almost new AC unit that they were not using and that they were going to give it to me. 🙂 So we are really excited about this news! We haven’t tried it out yet but we are going to get it installed soon!

After two wonderful days at the beach we headed home for final preparations of my bday party!!! Grandma has been such a big help!!!! My granny was to supposed to come for my party and I was going to have both my grandma’s here but she became sick and will not be able to come! We will miss her.
Love Malia

Having a laid back day with my mom while dad is spoiling us both… Happy Mother’s Day Mom. Thanks for taking such good care of me, fighting for me, and loving me the way you do. Hope you liked the flowers me and Natalia made you!
I love you,
Malia