Archive for the ‘Uncategorized’ Category

Scary good times!

Monday, October 31st, 2016

Happy Halloween!

Monday, October 31st, 2016

Today my besties came over for some Halloween fun! We decided we would be witches today and so the project was some good looking witches hats! Thanks to Natalia and Mom they did a great job helping us get our materials together so that we could make the perfect hat! We also made Pineapple O Lantern’s which turned out really spooky! Who needs a pumpkin when you have a pineapple in the tropics to cut up!

We made some fun halloween treats as well! I was so happy to see my friends! We had a great afternoon having some fun! Natalia brought us some fun treats and Halloween coloring books! Tomorrow we are off to San Jose to see my neurologist for a check up so its off to bed early for me for tomorrow is a long day of driving. Hope all had a great time today dressing up!
Love Malia xoxo

Home at last!

Friday, September 30th, 2016

My 8th Annual Benefit!

Friday, September 30th, 2016

September 18th 2016

After Morgan’s Wonderland we headed to spend a few nights at Granny and Paw Paws in Lockhart. My Uncle Jesse lives close to my grandparents and I was very excited to him that night. He is always in tune with me

Morgan’s Wonderland!

Friday, September 30th, 2016

September 17,2016

Morgan’s Wonderland is one of my favorite places to go when in Texas. After arriving to Texas on the 11th we stayed one night at our dear friends Jennifer Mckeough’s home. We had a lovely time with her and she cooked us a fine meal! We headed to my Grandpa’s Curtis and Gammy Pat’s place the following day and stayed the week with them hanging out on their ranch and enjoyed the peace and quiet.

On Saturday morning we packed up and headed south to San Antonio. We met my granny half way as Paw Paw Brown and Uncle Jesse were driving her to meet up with us half way! We also were meeting our dear friends Daphni and my best buddy Connor. Connor and I have a date each year to meet at Morgan’s! We ride all the rides together and check out all the cool things Morgan’s has to offer. This year Morgan’s added a ferris wheel. It was so much fun to be way up in the sky looking down below at the beautiful park. My granny is scared of heights but that day she got the nerve to go on the ferris wheel with us! It was so much fun. It was super hot that day close to 97 degrees but thankfully there were some clouds in the sky so it wasn’t too bad! Morgan’s is in the process of building a water park and next year it will be ready for me and Connor to play in the water. I can’t wait to see it! Morgan’s is simply the coolest place ever and the fact that I can be changed their comfortably, I can ride all the rides, and everyone is always nice to me. It is the best thing ever. I can’t wait to go back next year.

Love Malia

My texas trip!

Friday, September 30th, 2016

September 9th 2016
As always we have much preparation before we travel from Costa Rica to Texas. Besides from my parents trying their best to keep me as healthy as possible we as well have an entire house to pack up just for me. We travel with all my medical equipment, including a portable oxygen machine, aspirator, nebulizer, respiratory vibrator, feeding pump, bags, and syringes and all my medicines is to say are a few things to get together. We typically travel with a couple of extra suitcases so we can come back with medical equipment for me.

I am feeling good and am ready for this trip. I have had my typical bout with seizures bothering me every now and then and as well with some problems with phlegm in my lungs but over all I am well. We are excited about going to Texas and seeing all of our friends and family. It is journey worth every mile we cross and even though it doesn’t get any easier with my size it is worth every moment. I thank God everyday for all my friends and family and for those who continue to support me and help me each step of the way during. Natalia will be joining us this year and she will meet up with us a week before my benefit. I am excited and know this trip is going to be a great one.

We left for San Jose on Friday and we fly out Sunday. My parents always give me a day of rest before we fly and I am grateful for that day. Our trip to San Jose went smoothly and we were at Auntie Krystal’s house by 2pm that afternoon. Now it is just waiting before we board that big bird! Looking forward to seeing you all real soon.
Love Malia xoxo

our race!

Wednesday, August 31st, 2016

Costa Rica Special Olympics 2016

Wednesday, August 31st, 2016

August 17th 2016

I have had the honor to be invited to participate for two years now in the Annual Regional Special Olympics Costa Rica. It really is incredible that the small town that I live in organizes such a big event. My hand made invitation, the Special Olympics calling my mom to ask which event I would like to participate in and the overall support from the community was amazing. There were 200 athletes that were invited to participate from the surrounding towns. The parade began at 8:30am. The coordinator had told my parents that me and my dad’s 25 meter race was going to start at 10:00am. This is incredibly early for me!!! At first I thought how in the world am I going to participate in a race that starts at 10:00am when I don’t normally get up until 11:00am! As you know from my past blogs, I am not the best sleeper. I have problems with sleeping at night. Mom tried to convince the director to let me participate at a later time but rules are rules when it comes to the Olympics! So we attempted the week before putting me to bed at 8:30pm. Mom read books after books to get me to sleep but that didn’t work so well. The night before the race I not only did not go to sleep at midnight but later that night at 2am I had a big poop. I am not the best pooper either so forgive me for saying that night I had a big one. My mom and dad not only had to change me, but change my sheets, my pajamas, and bathe me! I finally got back to sleep at 3:30am.

At 7:30am mom came into the room to check on me and at that time I had one eye open. She took advantage of me being half awake. She stripped off my pajamas put on my racing gear and was just about to brush my teeth when Natalia came in to help. From there Natalia took over doing my hair and finished getting me ready while mom and dad packed the car for the day. My best buddies Genesis and Gabriella came to support me and showed up at 8am. They were great to have along as my cheerleaders and kept giving me pep talks on how I could do it!!!! We made it to the event on time. We arrived only 10 minutes late. At that time everyone was standing around and my parents had asked what was going on and why the parade hadn’t started? It turned out that one of the buses carrying 100 athletes was stuck coming up a hill. It had rained very hard the night before. The school was anxiously awaiting of news to see if the bus would pass… Unfortunately it did not and the kids from Jicaral had to turn around and go home and were not able to compete that day. This was a HUGE thing! Today’s race was about taking times to be qualified for the big National race held in San Jose in November! We were all very sad to hear that the other kids would not make it. (note to municipality, pave the roads! We have been fighting for that road to be paved now for years! )

The parade started and off we went with two bands! One was leading the front and the other band behind us. We marched for a quite a while. I was in and out of sleep more of less. Thankfully mom remembered to bring my ear plugs, as I don’t do very well with loud noises having the ear plugs allowed me to enjoy the parade and catch a few shut eyes as well! We walked to the gymnasium where we had the grand inaguarcion of the Special Olympics. I was able to meet the most special man. He was very special indeed. He was an amazing individual who accepted his physical challenges and faced the world each day with a smile on his face. He was proud, he was happy, he had the most incredible smile. He spoke to the crowd about being different, about loving who you are, about not worrying about what other people think of you only that you should love yourself. He is a motivational speaker for people through out Costa Rica and I was so happy to have the honor to have met him. He kicked off the Olympics in a grand way! I was now awake and ready to go to the stadium where my dad and I would be racing.

You see last year, dad carried for my 25 meter race. Last year was not as organized as this year so when we showed up the director told my dad to run with me and that is what he did! This year we practiced. Since I am so heavy now dad needed a little bit of extra support. We used my old Moby wrap that my parents would carry me around in when I was a baby. Natalia was an expert at wrapping me up close to dad and we practiced for a week straight running 25 meters with me bound to dad!

When we arrived to the stadium the judges told my mom that dad would not be able to carry me and run he would have to push me in my chair. We were not aware of this as this did not happen last year. Mom was a little upset as she told the judges we would have been practicing running in my chair if we would’ve known differently! The judges told mom that if we wanted our time to be “qualified ” for Nationals we would have to run with me in my chair. Mom said….. What???? We didnt know we were being timed for the National event! Now the pressure was really on. It turns out that we were to run against other wheel chairs. I have to say looking back on the day that there were not many kids out there in wheelchairs. Only me and few others. By the time we were called for the race it was me and dad, another girl that could run, and a older boy in a wheelchair. The competition was quite diverse.

The judge came down with his white flag… On you mark,,,, get set…… go…….. Off dad went with me running away, but the girl who could run was fast. So fast that dad decided to slow down so she could win the race. Our time 8.15 seconds. we could have done it faster but dad is so cool and so sweet he wanted to give the girl the moment of glory who was running to win. There on the side lines was my mom, Natalia, Genesis, Gabriella, Chrissy, Kristine, and grandpa cheering me on. Genesis and Gabriella were holding my sign TEAM MALIA that Natalia and her family and friends had made for me. My two best buddies were jumping up and down cheering me on as was everyone else of course! There I was flying through the field with dad pushing me and me feeling complete joy. It was amazing! The judges took our time and told us they would let us know if we qualified for Nationals! It was funny because my mom being her competitive self said to dad you could have run faster that we were being timed! Dad had to tell my mom to not be so competitive and that at the moment the most important thing was for the other girl to win. That’s my dad…. And oh that’s my mom too…. She always wants me to be ahead! By the time we finished it was almost noon. We packed up and went home so I could unwind and have some lunch. There was a big Olympian lunch at the gymnasium at noon but we decided to go home so I could relax for a bit and then go back for the awards ceremony and for me to receive my medal.

We arrived just in time for me to get my medal. It was already an amazing feat that I had been up and out of bed by 7:30 actively participating in the day, racing, parading, talking to friends and strangers soon to become my new friends. It was so incredible to be able to be a part of this day. Today was about equality, understanding, loving and accepting differences. I am happy to call myself a TICA. I am proud of my town and I can’t wait to participate next year. Maybe just maybe dad and I made the finals….. Will keep you posted!
Love Malia

back in the groove!

Tuesday, August 30th, 2016

Happy!

Tuesday, August 30th, 2016