It turned out days before Thanksgiving mom and Maria Jose decided to make the journey with me to San Jose. I wasn’t looking good my color was pale, I was on 02 constantly, and my fever was not going away. So we headed into San Jose and got a hotel for the week. After running a bunch of exams it turns out my C reactive protein test came back super high! 191 when it should be less than 10.. This test looks for inflammation in my body. My white blood cells were super high and my xray of my lungs did not look so hot! Thank goodness I did not have Pneumonia but Bronchitis and my doctor thought it would be okay for me to stay at the hotel and not be admitted to the hospital! I was catheterized as well and we found out not only did I have bronchitis but a UTI as well. That nasty bacteria Klebsiella Pneumoniae was back again. For the bronchitis we started with three days of Rocephin injections.I immediately started to feel better after the first injection and began to smile a bit more! Once we found out what the UTI bacteria was sensitive to in regards to antibiotics we switched it up to Denvar for ten days.
Our Thanksgiving was not dull. First of all it was Maria Jose’s last day with me. 🙁 So it was sad to say our goodbyes. Our dear friend had invited us over to her house for dinner for turkey and all the fixings. We were happy to get out of the hotel and my parents stoked to have a home cooked meal. My dad had come up the night before to spend Thanksgiving with us. My parents were enjoying the company and laughing and talking with friends when my mom noticed that the battery light was on my 02 machine. My dad went to plug it in and when he did the battery would not charge. We tried every electrical outlet in the house but with no luck. It was looking like the cable to charge my battery had decided to stop working on us Thanksgiving night! The next thing you know my parents are scooping me up and we are saying goodbye and thankfully dinner was almost ready and Krystal through together some plates of food for my parents. Out the door we went I did have a car battery charger that at least would maintain my battery and give me 02. So……what do now?? My parents are discussing how we definitely did not want to admit me in the hospital just so that I could have air… So we called Irene, remember her? She was my therapist before MJ. Her grandma used to have a oxygen concentrator that they had loaned me before. We called and it turns out they had given it away. Irene was so helpful and gave us a number to call Hospital Express! At this point in time, me and dad were in the garage at the hotel in the car with it running while mom was calling around trying to find me oxygen. CRAZY!! Mom had her doubts about someone answering at 9pm a cell phone and bringing us an oxygen machine. Guess what that someone did answer. A very nice couple was working that night and unbelievable they had a 02 concentrator in the back of their car! They delivered it to the hotel with in an hour and they also had the number to a nice man who fixed the cable to my portable oxygen concentrator the following day! What luck we have! We ended up buying the concentrator that the people brought to the hotel just to have for a back up in case of emergencies like the one we had Thanksgiving day!
Thanksgiving, it is about GRATEFULNESS…. What am I grateful for? That I did not have to go the hospital that night for just oxygen, that the lovely couple answered, for my parents, grandparents, Maria Jose, Krystal,finding a nice new therapist Natalia, my friends, and my dogs and cat Chupa. This Thanksgiving we won’t forget!
Love Malia