Things here have been pretty good!! I have managed to stay healthy for a while now. I have had a few lip smacking seizures in the mornings but other than that nothing too severe. These lip smacking events make be a bit tired but for the most part I have been doing great. Maria Jose is very pleased with me in my therapy and I have been working very hard. I have made great progress in my hands. My hands are no longer balled up in a fist. I have them open and relaxed. I am putting more weight in my hands as well. It seems that with getting older my brain is growing as well. I am much more alert and attentive. I track my mom and dad everywhere. I pay attention to what you are telling me and many times I try and talk back to you. Progress is a great thing and if I can only stay home and be healthy than I know my progress will grow leaps and bound!
Only a few times have we had to worry about my reflux but most of the time I have managed to get it under control. I fluctuate with my reflux. Sometimes I am really good and other days I have to go on O2 and be aspirated. My parents are contemplating taking me in for further to studies to see if I am a candidate for the Nissen surgery. We really dont want to have to do that surgery because it would require open surgery and anesthesia so that is not something any of us want to do but the reflux can be detrimental as well. So right now we are just thinking about the idea. No big moves yet.
My grandparents arrived on the 2nd and it was great to see them except that they both ended up getting sick the day after they arrived so I really have not spent much time with them as my mom has them banned from coming over to our house! Imagine that!! Life here is good right now. I can not complain. I am happy and healthy and we shall continue our motto Health Wealth and Happiness!!! Hope everyone is having a great start to the New Year!
Love Malia