October 21, 2012
The day after the benefit I did not have such a great day. The antibiotics I am on for this current UTI are messing with my stomach. I have cramps and gas in my tummy and am having problems going potty. I am also full of phelgm as I am having reflux so bad. At least I felt good for my party. I am not able to sleep either. It is going on three days that I have not had a proper sleep. My mom and dad did not get to bed with me until 5am Sunday morning as I was having to have respiratory therapy at 2:00 and 3:00 am. So Sunday was a tough day on everyone. Irene helped soothe me in the morning and mom and dad tried to catch a little shut eye. Basically Sunday was not the greatest day and we are headed to Dallas tomorrow.
On Monday we took off at noon to head to Dallas where we will be staying with Uncle George and Grace. Irene was giving me lunch in the back seat and immediately after I began to eat I began to reflux. They put me on O2 and by the time I arrived Dallas my heart rate was skyrocketing, I was breathing way too fast, and I was on 3 liters of oxygen. Mom and dad got all the equipment out and we started therapy. This went on for hours and this was the first time that my parents thought we would have to go to the emergency room. My phelgm came coming back over and over again. Finally it began to subside. At midnight Uncle George came upstairs and mom and dad both had the we are exhausted crazy look in their eyes and I was stll wide awake and fussing. Four days with no sleep would make anyone grumpy! Uncle G decided we needed a change of scenery and told my mom lets go for a stroll. So out the door we went at midnight strolling me around with my oxygen machine and not so great attitude. Scout (the dog) came along for moral support.
The stroll really did not put me to sleep but I did calm down. After we got back to the house they took me upstairs. Dad had fallen asleep on the couch. Uncle George patted me until I finally fell asleep holding his finger. I was so exhausted from crying and just not feeling well. Hopefully I can get some much needed rest.
Love Malia