We left for the 11am ferry. Dad helped us get hurried out the door in order to catch the ferry on time. We have many many things to pack up! We arrived at CIMA at 2pm. I was catheterized and had my blood tested. The blood test came back fine but the urine test came back dirty. Normally I always have clean urine and a positive culture. This time with the urine coming back dirty right away it definitely means their is an infection somewhere. I am a tad bit irritated and tired. We head out to Turrucares. A small town outside of the big city San Jose. It is a lovely farm house with lots of fruit trees, and a swimming pool and it reminds me of being home. Irene’s parents are so very kind to let us stay here, it saves my parents a ton of money not having to stay at a hotel. I love it out here. When we showed up Irene’s parents Lourdes, and Kiki where there when we arrived. They were so kind, they bought us dinner and me some papaya and yogurt and Lourdes brought mom some mommy medicine… aka a big bottle of red wine to share. They are the best! Mom thoroughly enjoyed talking with them. Irene had crashed as she had a headache as mom and Irene had not eaten anything all day. That night I did not sleep so well. I cried pretty much all night. I usually do when I am away from my home the first night. Mom put the water bottle on my tummy and it soothed me and I was able to fall back to sleep around 4am!
On Wednesday we went into to see my dentist Dr. Mermelstien. He cleaned my teeth for me and said he was very very impressed with my oral hygiene! I did not mind too much him having his fingers and tools in my mouth. I have to say myself I behaved very well. After my dentist appt. we had lunch at Linda’s my first physical therapist ! Matter of fact it is her husband Simon who is my dentist! We had a lovely lunch at her house. After that mom and Irene and I went shopping price smart (Costco) to buy diapers and things for the house. We then headed out to Turrucares. I slept much better that night. Mom was just sure that we would be able to go home the following day.
At 10am my mom called the laboratory and asked what the culture had shown. Turns out I have an even nastier bacteria called Enterbacter Clocae. It is a very resistant bacteria. There is only one drug that is going to work without my having to get hospitalized and receive the antibiotic intravenously which is not going to happen. My pediatrician called the infectious disease doctor and asked what we should do. She suggested I take a drug called Ciprofloxacina. It is a very big broad spectrum drug that seems to be the only oral antibiotic that will kill this bacteria. The only problem is that this drug is typically not given to children under the age of 18. The reason why is that the antibiotic penetrates down to the bone and can stunt growth. Mom was not happy to hear this and called the urologist and asked his opinion. He told her she could use a different drug completely opposite of what Dra. Castro was telling us. So mom called dad and he said to ask another one of our doctor friends Dr.Armando who took care of me in ICU that year at the children’s hospital. He told my mom not to think a second more and to give me the big drug. Well that was now three doctors against one so mom made the decision to go with the Cipro drug.
The only catch with this drug is that is has to be specially made. It is now Friday morning and mom is trying to find out how we are going to get the drug as CIMA the hospital does not have this service. It was a complete fiasco for my mom to get the drug made. By 11 we still had no answer and what they were trying to tell us was that the antibiotic would not be ready until Monday. That is when I thought mom was going to have a nervous breakdown. Monday??????? Are you kidding me? I am sick and need the drug now!!!!!! Irene ended up taking over as my mom was losing her patience and thankfully Irene calmly told them our situation, that it was not easy for us to just jump up and move anywhere quickly and could they please understand our situation and have it made that day. Well they finally said yes, it would be ready by 5pm. This laboratory is in downtown San Jose and it is Friday and 5pm! Thankfully Irene’s sister Carlotta works downtown and was able to swing by the lab and pick it up for me. It was so kind of her help us out. We waited at Irene’s house in Escazu for Carlotta to show up with the drug. We are heading home tomorrow for our home in Delicias. Mom had decided we will come back in ten days to do another culture and see if the bacteria is gone. What a very very stressful day, thankfully all I have been doing these days has been sleeping. Mom on the other hand, well she is one big stress ball!
Love Malia