Archive for March 9th, 2017

sleep can be so hard

Thursday, March 9th, 2017

Last night I was having trouble sleeping. Slowly but surely I begin to drift off to sleep when this volt of electricity comes rushing through my body. It lasts only for a few seconds but it does not promote good sleep. Finally my body drifts away into sleep land. At 1;15am I awake again, frozen. I could have been in the movie. Frozen are my arms, legs, eyes, for 25 seconds when the seizure monster lets me go. I take a big breath in look at my mom and then the spasms begin. One after another after another. Arms and legs twist to one side. Within 5 minutes my body has had a total of 85 spasms. They are happening every second. The oil helped bring the spasms down but they continue on…. So the next step is use valium rectally. This usually will stop them in about 5 minutes. The seizure lasted a total of 25minutes. I drifted back off to sleep. At 3am I am at again, frozen. Mom gives me oil, and this one is not as strong as the last one. The spasms are not as intense but annoying either way. The seizure monster will not leave me alone. Again the oil helps but does not stop them so again a small dose of valium is given. Finally back to sleep again, the seizure monster has left me wiped out. I didn’t fully wake up today until 1pm.

Natalia came to work early today. She has the patience of a saint. She stayed by my side all morning while mom was out working. The rest of the day I was exhausted, the heat here right now is killer. The middle of the day it gets up to 95 degrees, I am the only one in the house who has air conditioning but we don’t stay in my room all day! It sure is nice to sleep in it though! Natalia got some action out of me late this afternoon once the sun started to go down. I am still weak though for the seizures that are attacking me. I pray I have some peace at night. Please let the increase in oil start working better.

Love Malia