Malia Moore

We arrived home from San Jose around 5pm. We are all pooped! This has not been a good week for me. I have had seizures, have been sleeping way too much, have had lots of reflux and hiccups, and overall not happy. Mom fears that the antibiotic is not working. Our dear friend Holly, has helped us get in touch with a infectious disease Doctor in Boston. She has been very kind and has been speaking with my mom. Mom has sent her a ton of my reports to look over and she has sent them on to a pediatric urologist at Boston Children’s hospital. Hopefully they might see something that the doctors here do not.

Since I am being so lethargic, and continuing to have seizures on a daily basis we have come to the conclusion to go back to San Jose on Friday. Geez we have not even been home a week this time! Back to the ferry we go. Dad is driving us in and we will be spending the weekend in Turrucares again. I cried pretty much the entire way to San Jose. I am not feeling good. We went straight to Cima to catheterize me and to do another culture. My first pee test comes back clean now we have to wait three days to see if culture shows anything. It should be negative I am taking this heavy duty antibiotic! What else could be going on?

We went to Irene’s farm house out in Turrucares and spent the weekend there. Dad went home on Sunday and drove Irene’s new 4×4 Jimmy home! Now that she is living out in the jungle she needs 4×4!!! Dad took the 8pm ferry so he could stay as long as he could with me. We are planning on running more tests. My parents are determined to find a reason why I keep getting these infections! Hopefully something good will come out of this trip.
Love Malia,