Malia Moore

My Halloween does not consist of me dressing up and trick or treating. Although I was sporting a really cute bright orange Halloween top! We are headed to San Jose  to see my doctors. We left the house at 9:30am and my first appointment is at 4pm. I have to go see Dr. Castro for a vaccine shot as I am due and this one covers  chest infections and meningitis.

We arrived to the hotel first and unpacked everything in the car and then headed straight to Cima to see Dr. Castro. I did not cry when I got my shot I just arched my back and doubled my fists and gave Dr. Castro a very mean look. Mom and dad are prepared for me to get a fever so they are giving me Tylenol every six hours. I have to be careful with getting a fever as it can cause me to have a seizure. Thankfully I have not held my breath today.Vaccines always make me tired and groggy so we went straight to the hotel after CIMA so I could rest. I had a pretty good night. I never do well in strange places but I am doing good.

Tomorrow we go to see Geovanny my other physical therapist as he is making a stand for my new chair to sit on. My parents want me to be at the same height as them at the kitchen table so that I can feel included at the table. I cant wait to get it!

My parents are also taking me to see the dentist. The other day I bit my lip so hard a pool of blood came out of my mouth and onto the bed. Sofia called my mom to come upstairs to show her the blood. At first neither one of them knew where the blood was coming from. Mom retrieved a flash light and looked into my mouth and sure enough I had bit my lip hard.

Since I do not eat by my mouth my teeth do not get filed down and my canine teeth are like mini vampire teeth. So we are going to see the dentist. I do not like anyone touching my mouth. Mom already warned my dad and Sofia that she would not be in the room as she does not like dentists either. So dad and Sofia are going to cheer me along and try and keep me calm. I hope I can behave!

Love Malia

October 28th

Today during lunch I all of a sudden just stopped breathing and turned blue within seconds. My mom yelled at me and I caught my breath and started to breath again. At first mom did not think too much of it as I have done this once or twice before. The next day I did it three more times and still keeping turning blue. I continued to hold my breath for three days and am making my parents very nervous. I only hold my breath for 5 or 7 seconds but my face and lips go blue. My parents think it is a new type of seizure. They call them absent seizures. Mom asked on our support group other moms for advice and they seem to agree it is a new type of seizure. Thank goodness on Halloween we are heading into San Jose for a routine checkup with my doctor and obviously a visit to my Neurologist Dr. Luna. Sure hope this goes away soon.

Love malia

October 26th, 2011

I started my new diet on October 19th it consists of Fresh goat milk that sweet Luisa brings to me daily from her goats. I also take 3 egg yolks at night and am eating chicken mixed with carrots and broth. Everything of course is made from scratch. One day mom and Luisa spent the entire day cooking up my meals blending them and freezing them so I would have plenty for the next week!  We have our own hens so we get fresh eggs daily. Pediasure is no longer in my diet. The nutritionist said it had many chemicals and sugar. I am doing really well on this diet and the egg yolks and fresh goat milk are settling well in my tummy . I still continue to take my Cod Liver oil daily as well as Cataplex E2 vitamin supplements.

I feel better and am over my cold. I am more alert, happier and smiling lots. I think this new change has been good for me.

Love Malia

October 7th 2011 thru October 24th

My first day of workout and I was not able to go out to my platform as it was raining really hard. It rained for 18 days straight. Not once did Sofia and I go out to the platform. It is cold and windy and most the time we just stay upstairs as it is too cold and windy downstairs in our kitchen.

After so much rain, we are all looking forward to some sunshine. My parents have been making a different soup each night. It is cold here compared to the heat we just came from in Texas.

I am having a hard time sleeping. For three straight nights I could not sleep. I am not sleeping during the day  much either. My parents have such a hard time when I can’t  sleep and am crying. I have a hard time because I want to tell them what is wrong but I can’t. It is so frustrating for everyone. I am not wanting to work out that much either as I am irritable and crabby!

My mom called the new nutritionist and she said it would probably be another of couple of days before I began to sleep again.I have totally changed my diet and we are not sure if this is causing me restlessness.  Two more nights I did not sleep well but after that I began to sleep like I normally do which is pretty much all through the night. Everyone was relieved including myself to finally get some rest.

When the sun finally came out everyone was so happy. It felt so good to leave the house and get back out at my platform. Even though it was raining I still worked out twice a day upstairs in our room. I am doing really well considering how sick I was. I still take oxygen some times during the day and at night. Sofia says she is really impressed on how well I am doing considering I had a pretty big break in Texas from working out and the fact that I was sick. I think the new diet is helping  me.

Love Malia

October 2nd 2011

We woke up to a sunny morning. Our favorite day of the week. I am still coughing a lot and not feeling a 100%. Our plan is to go see my pediatrician on Monday and make sure my blood work is okay. I am still taking antibiotics since we were never sure what exactly it was that got a hold of me in Texas.  My parents are pretty sure it is a virus. We hung out at the hotel and rested up from our long  journey home.

The following morning we went to CIMA. Dr. Castro, says from looking at my blood work that it is a virus and even though I should not be taking antibiotics I have to finish the course and stay on them for another week. We left on Tuesday to go home. I am still taking in oxygen because my chest and lungs are congested. The trip home went smoothly we arrived home at 5pm. It was so good to be home. I finally get to sleep in my bed, well not really as I have become accustomed to sleeping with my mom and dad again but I know it will not be long before I am back in my bed. I always like sleeping with them when I do not feel good as they make me feel safe.

When we were in San Jose , we called Sofia my physical therapist, but unfortunately she as well caught a nasty cold and is having to recuperate before coming back to Delicias to work with me.

When we were in Texas, my mom talked to an alternative doctor and she suggested to my parents to cut out Pediasure and I have recently started taking Super D omega 3 Cod Liver oil. It seems to be doing me some good as I feel like I am getting better faster.

Home is where the heart is and we are all so glad to be here. Sofia came back to work on Friday and we started our workout routine slowly but surely as we are both just getting better. I am ready for next week so I can get my routine back and hopefully will start feeling better soon!

Love Malia