Archive for March 25th, 2011

Adios Grandma Marg!

Friday, March 25th, 2011

After almost two months my grandma is leaving us. We tried to convince her to stay but she has to get back home! She has her friends and curling to get back to and maintaining her home! Grandma I just wanted to thank you from the bottom of my heart for being here for all of us. It meant alot to me that I could look over in my hospital bed and see you there holding my hand. Thanks for keeping my mom calm when we would not get the best of news about me from the doctors. Thanks for all that you did for us and most especially thanks for all the stories you read to me in my rocking chair. I do love my books! I love  my new pool and I am enjoying swimming in it daily. Also grandma thanks for all your help in our home once we got home. Looking forward to your next trip here but hopefully it will be for fun and nothing else! I love ya grandma!

Malia

Home Sweet Home

Friday, March 25th, 2011

March 25th 2011

It has been a while since my last posting. I have been enjoying being home. It is so great to be back home and sleeping in my own bed. It has been almost a month now since we returned back home. The first two weeks were mainly me just relaxing and having my parents and grandma spoil me alot. That was nice, I got to take it easy.

 I have had some readjusting to do with my eating. My tummy seems to have shrunk since I was in the hospital for so long. My mom and dad normally feed me lunch and dinner with a syringe thru my gtube but I have reflux and it seems to be worse now so we are having to take everything much slower. One night I started breathing very rapidly and my oxygen level dropped. Turns out reflux can cause me to breathe harder and cough alot. Mom called my doc and she told us we had to slow everything down and keep an eye on me that I do not reflux too much. Little baby steps to get me back to where I was before. Right now I have a feeding pump and I am taking in 8 ounces in over three hours, three times a day. Mom and dad get up at 4:30 am to give me my reflux medicine. I have to wait an hour before having breakfast for the reflux medicine to work.  Hopefully I will be back to eating like I used to do as right now it is a long time to be sitting in a chair for so long! I am just happy to be home though! Everything will be back to normal sooner or later it just takes a little time and patience!

Love Malia