Last Monday I decided I was going to sleep in late. My mom and dad had gone to town and had left me with Daniella and Luisa. They do a great job looking after me whenever my parents are not around which is almost never! Ha! It was 11am and I still had no woke up yet. So they started to call my name, flipped me over on my side, patted my bum, tickled my feet, and I would not wake up. So they called my mom. When Luisa said I would not wake up my mom nearly fainted. Iwas breathing good I just was in a deep deep sleep. My parents headed home right away. Twenty minutes later, Luisa picked me up out of bed and that woke me up! Geez I was having such a good sleep! The next thing Daniella was taking me out to the platform to work out. There I had a seizure. By the time mom and dad got home I was getting ready for lunch. I was doing okay I was just very tired. The seizures can take alot of energy out of me. I took a 2 hour nap later that afternoon and when I woke up I was very groggy. I really did not want to wake up. I guess you could say I was in a fog. I dont know what to think about that. After dinner I went to bed and slept all night.
On Tuesday, I was back to myself up and at it with no sleeping problems. I did not want to work out and was very lethargic. My mom had contacted the neuro and we think it might be the additional increase in medication and seizures that made me so sleepy that day. My mom also called upon another expert her good friend Tasha. She has a little boy named Jordan who also has Lissencephaly. They talked for quite sometime about me. Tasha made my mom feel better as Jordan after seizures sometimes can sleep forever.
By Thursday I was feeling better and was begining to work out with more strength. My mom worked out with me today and tomorrow as Daniella had to go to San Jose. Daniella always calls my mom “la mano duro” which means the tough hand! I can easily get Daniella to stop working me out by giving out a few crys. My mom on the other hand, doesn’t let me get away with squawking and continues to work me out! She is no push over!
Friday we decorated our Christmas palm. Me and dad supervised my mom. It turned out beautiful and I really like to look at the lights.
When Daniella showed up on Saturday I worked out for two hours straight and did a great job. I was back in action. I only have had two more seizures since Monday and they were small. My parents will take me in after the first of the year to get blood work done on me and to see how my liver and blood count is.
Yesterday was Sunday and my day of relaxation! We went to George and Karen’s at the beach. I went for an hour swim in their pool. We had a beautiful Sunday together. Tia Maria came as well and swam with me in the pool. Today she left for Italy. We will miss her! Christimas is around the corner. I cant wait!
Love Malia 🙂