Since Thanksgiving things have been going well. I have had a few road bumps along the way but we are moving through them. On the 27th of November I had a seizure. It was the first time I had experienced a seizure in over a year. I have been very blessed not to have had them since September. One day Daniella and my mom were working with me at the platform, we were working on my neck control. I do this one exercise where the ball is between my legs and I put my hands on the ball and lift my head up. I am really good at this exercise. Next thing you know my head came crashing down and hit the ball. My mom thought it was wierd that I did not have the control like I normally do. We did the exercise again and my head banged the ball one more time. My mom knew then that something was not right and laid me down on the table. The next thing you know my legs were flinching every ten seconds and this lasted about 5 minutes. The seizure made me very lethargic.
Seizures normally come on when I am waking up from a nap. I had another one the following day after my nap that lasted a bit longer. My mom called my neurologist and we have increased my seizure medication. I have not had to increase my dosage since I was six months old. It makes sense to have to increase it as I am a little chunky monkey now. I had a few more seizures over the next few days but the increase in medication has helped control them. I am hoping they go away again for good. The type of seizure I have is called West Syndrome. It is the only seizure that actually causes devlopmental regression! It is really important we get my seizures under control beacuse all my hard work and effort over the last two years are in jeopardy if I begin to consistently have these seizures! So all my friends out there say a prayer for me that the seizures go away!
Love Malia