Sunday November 22, 2009
Mom and I took the afternoon flight to San Jose. Dad took the ferry and drove. Tomorrow morning I will have a PH study for acid reflux. What you might say is that? Well, they are going to stick yet another tube down my nose along side the tube that is already in my nose for feeding me. I have to keep this tube in my nose for 24 hours. It will measure if and how much acid reflux I might have. My Ped GI doctor is the chief of GI at the Children’s hospital. So I had to go back to that hospital to get the probe put in my nose. It went ok. It did not hurt too bad and his assistant was good at placing it. Needless to say, I did not sleep that well… Next morning at 6:30 am we went back to the Children’s hospital to have the probe taken out and now I had to do an Endoscopy procedure.
This involved me having to be sedated. The procedure consisted of a tiny camera going down my esphogaus and looking around in my stomach. They were looking to see if my esophogaus might have been burned from reflux, the positioning of my colon and my stomach and basically just to see how it all looked inside of me. It was a fast procedure about thirty minutes. My mom and dad were waiting outside for me. They took me to the recuperation room. I woke up about an hour later.
After the doctor and nurse checked me all over I was free to go with my parents. The nurse had just taken my IV line out when the doctor came back in and told my mom and dad that he needed bloodwork from me for the following days surgery. This was not good news as I am very very hard to draw blood from. My veins are tiny and thin and it is not easy to stick me! The doctor had told my parents that we needed to have the surgery done at the Children’s Hospital and he had scheduled it for 6:30 am the next morning. The private hospital did not have small enough equipment to do the procedure on me but the Children’s hospital did. My parents really wanted to do it at the private hospital. They wanted to be able to be together with me in my room. Well, we are now on a new mission. We have to draw blood. We went to a lab that my mom always takes me and the lady there does an excellent job on finding my good vein. This time there was no blood coming out fast enough as my veins had already been poked so they call that a collapsed vein. Maureen told my mom she did not feel right sticking me anymore. So we gave up and went to the hotel.
My mom called the doctor to tell him we had no luck and if we could reschedule the surgery. He said no he could not reschedule and that we had to get the blood to try my other arm. So……….. my mom called Maureen and paid for her to come to our hotel room and try to draw blood from me again. She tried the other arm, my wrist, and my foot. No luck. Bummer for me as this hurt alot! I was really tired of people sticking me with needles. My mom and dad were getting upset too. So Maureen tells us the only way we are going to get blood is by sticking me in my femoral artery and that only a doctor can do this to me. Well it is 5pm my mom walks outside and the sky open up with rain and it begins to pour down. My mom at that moment talked to my dad and decided that there were too many signs telling us not to do the surgery the following day. So my mom called the doctor and cancelled. I was happy about that as I already had a couple of hard days.
It worked out to my advantage! My mom kept calling the doctors at the private hospital and asked them to please try and find the right equipment small enough for me. There was only one pediatric machine in the country and it was available!! My mom was able to organize my surgery for Saturday morning at 6am. Now I get a few days to rest up before my surgery! I cant wait to get this tube out of my nose!!